Connect
← Return to Polycythemia Vera: Just been diagnosed
Discussion
Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (421)Comment receiving replies
Cristinia, I also feel lucky that of all cancers I could I acquired PV. My husband died of Pancreatic cancer and endured terrible pain and wasting.
I am newly diagnosed and took my first dose of Hydroxy urea yesterday.My doctor is starting me very slowly 500mg every other day. Except for elevated Hb Hct Plts and +JAK2 I really am symptom free. I just turned 80 and feel optimistic that I will do well.
I wish you all well and will follow along with you . I will also seek your advice as my treatment advances and the need arisrs.
Replies to "Cristinia, I also feel lucky that of all cancers I could I acquired PV. My husband..."
Connect
Hello. I too was started on 500 mg but when I found another hematologist she immediately increased dosage to 1000mg and it worked. As I am still obese I think the dosage was based on my size.
And, while some may question my attitude you know exactly why I feel the way I do. I am so sorry for your experience and the loss of your husband to that horrible disease.
You will be OK and Im here for you if I can answer any questions and support you.