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Profile picture for bettycll @bettycll

I really appreciate all of the information above, especially all of the links from Lori. I was diagnosed with CLL a year ago. It was like a punch in the gut! Even though the oncologist said it was slow growing - all I could think of was people I knew who died of leukemia (she focused on "chronic" while I focused on "leukemia"). I have immersed in research and joined Mayo Clinic Connect, of course. I feel like I am a sponge for information on CLL (and other issues I have, like AFib). My CLL is Stage 0 and hope that will remain for many years. Although my counts fluctuate, I am stable. It is encouraging to read about others who have remained stable for many years.

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Replies to "I really appreciate all of the information above, especially all of the links from Lori. I..."

@bettycll

I was diagnosed a year ago too betty and I am at Stage 0 also. I am 75 and live in Nova Scotia and would like to keep in touch with you because we are similar in our Stage and diagnosis. Do you have enlarged lymph nodes also? I am Stable right now so doing good. No issues except my hair sweats at night. Does yours?

@bettycll when you say your counts flucuate, can you tell me what the numbers are? I cant get answers on that. I just got diagnosed in Febuary after a Jan physical showed abnormal WBC and
ALC counts.....thx