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@luvs2dance

I was taking Jakafi for a year and my numbers weren’t changing actually getting worse and I was getting blood transfusions. He decided to put me on Vonjo and I did really well for 6 months. Then the diarrhea began. I had to drop back to 3 pills daily. So not on full dose for past 5 months. Also was low in folic acid so starting supplementing. 2 months into taking folic acid stools are more formed now.

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Replies to "I was taking Jakafi for a year and my numbers weren’t changing actually getting worse and..."

Oh, boy, I am sorry to hear about the Vonjo. The stool troubles can be so demoralizing. Glad to hear you've had some improvement with folic acid. Thinking about you!

Really sorry to hear your rough time with this. Glad to hear the folic acid seems to help some. Are you getting your B vitamin levels checked regularly?
Sending you hugs.