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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (427)

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@christina3444

First, Im sorry for your loss. Second, thank God for your husband.
Now, and I will not pursue this with you again but, it takes NO expertise to order a blood draw and request you be tested for the JAK 2. It’s an ordinary blood draw. The result is either positive or negative and then a referral to specialist.
Maybe it’s the health care system you’re in but otherwise, what I’ve described is all it takes. In fact, I think if you contact an independent lab like Quest, you may be able to order it yourself.
You have pain and you’re scared and if you have PV there’s no reason to wait any longer than you have to begin treatment.
I’m sorry but I’ve heard too many stories that would have ended differently if reasonable action had been taken earlier.
If I have overstepped, I apologize.

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Replies to "First, Im sorry for your loss. Second, thank God for your husband. Now, and I will..."

I absolutely agree it should be simple to order, but he won’t do it. I tried to call an independent lab, but they want almost $1,000. My copay at the doc for lab work is just $25, so I’ll just have to wait.

I plan to be very proactive in my care, and will ask lots of great questions. Thank you so much!