My sister was diagnosed with stage 4 esophageal cancer

Posted by anita1948 @anita1948, Mar 29, 2025

My sister was diagnosed with stage 4 esophageal cancer and has lost a lot of weight. She has a feeding tube in her stomach and needs to gain weight. I've heard that sugar feeds cancer so looking to make her food without sugar. Has anyone found a mixture I can put into her feeding tube which helps gain weight, little to no sugar has vitamins to help with her upcoming radiation and chemo?

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

Thank you for this information, I will share it with my sister. Today will be her third radiation treatment.

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Profile picture for ktv2019 @ktv2019

I was on a feeding tube for one year during my treatments for stage 4 esophageal cancer. Following chemo, radiation, and surgery I used both a regular feeding tube and a feeding tube using a pump. The pump allowed me a very slow ingestion of the supplement and I would even be hooked up to the pump at night while I slept. I was able to gain weight back to the point of pre-diagnosis weight. The feeding tube was removed 6 months after surgery. The nutritionist was able to fine tune the supplement used so that I had a high calorie liquid that I could tolerate. I was unable to take anything by mouth. I am now 6 years cancer free.

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KTV
Wow, that is really great that you are now cancer free after all that. I had chemo, radiation, and jtube for several months , but no surgery. Where did you have treatment?
Don

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Treatment was local on the Monterey Peninsula. We went up to Stanford for consults but were assured that our surgeon and oncologist, formerly at Stanford, were as good as it gets!

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Profile picture for anita1948 @anita1948

Hi Don, she is very weak and only able to handle 3 8.5 oz carton of nutrition. Each one has 350 calories and the doctor wants her to get at least 2000 per day. I’m researching how I can make her something in a blender with higher calories. I have to take her on Monday to see her doctors so hopefully I will get the green light to create something for her.

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Hi Anita1948, There is a product on Amazon for mixing with milk or protein shakes called NakedMass it comes in a plant base or whey base. One shake is 1230 cals.

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If you wish to believe that going to a diet for your sister of little to no sugar will benefit her... then who am I to argue. My belief, from all that I've seen in counseling many hundreds of my fellow EC patients all over the world is that that ship has sailed... she has EC... it couldn't care less what her diet is. It will burn calories anywhere it can find calories. But your sister, like most of us on our EC journeys, is likely losing weight and is very weak. She needs calories (and hydration) any way she can get them! I don't care if she eats 10 donuts a day... she needs to stay strong enough to keep getting treatments. I know I had a time during my neoadjuvant treatments where I could swallow nothing. So I leaned heavily on my J tube to live... and that was 5 years ago. I know G tube feeding allows for more options than J tube feedings. All the best.

Gary

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How is your sister doing. My wife has the same problem. Unfortunately she refuses to get a feeding tube. I think a lot of her feeding problems is also psychological. All the doctors we've been to pretty much told her that she'd be dead in a year to year and a half.
I've taken her to our regional best hospital for cancer CU Denver Anschutz and MD Anderson in Houston. Tried to get her into the Mayo clinic,12 week wait. They all say the same thing. No hope, no trails, no alternative treatments.

So.... Like I said I believe it's more psychological. Cuz she feels what's the point she's going to die anyways. We've had no positive medical influence on her case.

She has stage four squamous cell carcinoma in her esophagus. The reason it's stage 4 it spread to the lymph nodes in her abdomen. Initial chemo has been shrinking all the tumors. But because nothing has localized nobody will touch her.

I hope your sister finds strength with the feeding tube and strength in you to go on.

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Profile picture for ktv2019 @ktv2019

I was on a feeding tube for one year during my treatments for stage 4 esophageal cancer. Following chemo, radiation, and surgery I used both a regular feeding tube and a feeding tube using a pump. The pump allowed me a very slow ingestion of the supplement and I would even be hooked up to the pump at night while I slept. I was able to gain weight back to the point of pre-diagnosis weight. The feeding tube was removed 6 months after surgery. The nutritionist was able to fine tune the supplement used so that I had a high calorie liquid that I could tolerate. I was unable to take anything by mouth. I am now 6 years cancer free.

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@ktv2019
Wow stage 4 EC. My wife has stage four squamous cell carcinoma in the esophagus. Stage 4 due to lymph nodes in her abdomen. When you got radiation did your cancer localize before treatment or did they do radiation to every thing

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I've been telling people a long time that liquid hope is what saved me. I went and weigh 108 and I went out weighing 108 it's all vegan no artificial sweeteners no onions no milk products you can get it on Amazon and if you look at who the manufacturer is, if your doctor calls up the manufacturer, you can get about eight free samples and I asked my insurance company with three appeals and finally they paid for it while I was in the hospital for 15 days and when I came out and needed feeding tube packs, the one I got called liquid Ho taste like squash soup you can eat it heated up or you can eat it right out of the bag and the same company makes a product called Nourish which has more fruit in it. I am intolerant of so many foods I get pain and diarrhea from milk products onions, cruciferous, vegetables, avocado anything with milk protein in it so these foods really saved me. I used it in my feeding tube and I used it as meals each one has about 490 cal so depending on your size you could eat three or four or five a day. I wish you luck and I hope this saves her from feeling bad and from losing too much weight. It has no chemicals in it.

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Profile picture for anita1948 @anita1948

Thank you for the information. I'm looking into making her a high calorie low sugar shake which can be put into her feeding tube. She can't have anything by mouth not even saliva. In addition, she will have the nutrition cartons supplied to her from her doctors. They want her to get around 2000 to 2200 calories per day. I just need to get the okay for what I'm able to give her or not with the radiation and chemo she will be getting. I've researched in the past about how to starve cancer and what cancer needs to survive, trying to get back into that mindset to help my sister. Oxygen is not cancer's friend, added sugar is. Some of the research I can recall is cancer grows where it can find a dry or damaged cell in our body. I will be focused on what I can do to help her and all the conversation I'm receiving on this platform is very supportive.

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