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Anyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (196)Comment receiving replies
Yes, since 1996 with only having oral chemo 3 time when my white count became 80-100. I have been stable since 2015 with just blood work twice a year to check. It was scary at first, but I remember my first oncologist telling me to go about my life as though nothing had changed. It took a while, but eventually I did.
Replies to "Yes, since 1996 with only having oral chemo 3 time when my white count became 80-100...."
@nana120THat is so wild to me. I was recently diagnosed. I used to be seen for hematology at another practice. I noticed that my white blood cell counts were going up, but no one told me why or answered my questions. Now, years later, I find out why. This 'Wait and Watch' approach sent my anxiety through the roof. It is crazy. Intellectually, I get it. But emotionally it does not make sense.
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Happy for you! Your post is very encouraging as I have just been diagnosed with CLL. Thank you! Best to you.