I was diagnosed with stiff person syndrome back on 2010 . after many visits with different specialists and being misdiagnosed with ankelosing spondylites
and being treated for about a year for this condition, I had I flare up . then the treatment stop working . and when I ask the reumatologist how to prevent the falls that i was and still experiencing . she realized that i had other condition since, people suffering of spondylits do not fall. So I start again the process on finding out what was wrong with me. I was referred to a neurologist but after many MRIs and other studies he could not figure out what the problem was
He referred me to UCSF they did a blood test that was sent to the Minesota Mayo Clinic for the diagnosis. as of this day i havent received any treatment just valium which is not helping me and my condition seams to be progressing .I believe I have being able to manage the condition by being positive and keeping active working out regularly
Whaay Im seeking now is to find something else to help me with the stiffness and if posssible stop the progression of the disease