Fibromyalgia

My fibromyalgia diagnosis was 10 years ago. I also sleep with a pillow between my legs and I call her my friend. Yes, when SH_T hits the fan and symptoms get worse but NOT AS BAD since I’ve started increasing my activity daily. The feeling of accomplishment and positive thinking that a small amount of movement achieves definitely helps reduce the stress of all the bad stuff. Keep moving and enjoying its positive effects along with your diet changes and (for me) I’ve found the pain diminishes over time. Stay positive!

I am sorry you got this terrible disease. After 45 years with it, I can only tell you to ty to handle the bad days and not overdo the work on good days. I can't go out in the cold and rain so I schedule my days by the weather. All the best.

I was recently diagnosed with Fibromyalgia, I enjoy having massages of my back and neck, but can’t stand to have my legs or arms massaged…the pain is intense more in my legs. In the last year, it is difficult to get thru the BP test before most doctor visits. I try to relax, but my brain is yelling, “it hurts, it hurts, it hurts” resulting in a high blood pressure readine. At home, I use a wrist monitor which causes no issues; my GP prefers I use the regular Home BP machine with arm cuff…I attach it loosely and most of the time it works fine with little to no pain. (If the cuff is too loose, it will error out, and I just try again. This all started at age 50 when I fell down 17 stairs in our basement; I smashed my T8 vertebra (it looked like a squashed beer can!) Then had a new type of back surgery for that time…a Kyphoplasty. The pain from the fall, moving forward was always intense. I was sure if I could continue living with that type of pain. It improved a little bit after 1 year, and became much more management after 5 years. Living with this ongoing back pain from my injury (which has never resolved) I get an annual radio frequency ablation to spinal nerve roots from vertebrae above an below my damaged T8 vertebrae. This has developed into an automatic response to pain, as instant pathway to nausea and vomiting which still exsists for even moderate pain. I think my Fibromyalgia developed from these circumstance; and because I have several autoimmune diseases & conditions. How did you find out you had Fibromyalgia, what were the circumstances?

I had pain all over my body, rheumatologist touched the trigger points and I nearly passed out. I also had severed migraines with aura at the time. Now at 77 just left with FM. Pain is just worse.

I'm sorry, I forgot to tell you (fibro fog) that at first I enjoyed massages but now if they touch my body wrongly I will lash out so no longer go. Only to physiotherapy where he uses IMS needles. I wish you the best.

Try MFR. There is a section here. Sounds like your nerves are on high alert. They need to be calmed. Massage, heat, sauna, bathes, relaxation and gentle does it. - walks and gentle yoga breathing. Even sitting in a rose garden and breathing deep.
My body was shutting down in 2004, and finally, I was diagnosed by a rheumatologist. I am proactive and found that being a regular user of light opioids was best for me over the years. Helps me get my walking and exercising, which means I get oxygen to my muscles and nerves. When I have too much stress and I can't relax, it returns. Also, when the weather is bad (overcast and wind are the worst for me). It's like a light switch goes on, and I "flare." So, I have had it for 25 years, but I learned how to deal with and cope with it. It is an "invisible" disease. I can be SO MISERABLE, and no one sees it.