← Return to Stiff Person Syndrome: Want to connect with others

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@maliakajeme

I just joined this mayo clinic connect. I have been struggling for over 2 years now since my car accident. I was diagnosed with fibromyalgia. chronic pain, and pelvic floor dysfunction. The other day my whole body from my neck to my ankles became stiff, so stiff I wouldn't move at all. I couldn't walk, turn my head, or flex any of my muscles without extreme pain going throughout my body. I had to call 911 and be transported by ambulance to the ER. When I was at the ER they said it was a withdrawal from my meds that I take for my Fibromyalgia and that it'll get better. I have had to use a walker and cane. I can't drive. I have trouble doing a lot of things. I have seen so many doctors over that years that I can't even keep count anymore. I scheduled any appointment with my pain management doctor and they said that this is weird and doesn't sound like fibromyalgia. They told me to go see my primary care doctor, I didnt a video visit with my PCP. He is concerned and referred me to physical medicine and rehab. That is all I cant say right now but after looking up my symptoms; Stiff person syndrome came up. So I am trying to figure out if I have that rare condition. I have tried physical therapy, chiropractic, water therapy, occupational therapy, massage, and bariatric surgery (to lose weight), Nothing had worked and I am at a stand still.

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Replies to "I just joined this mayo clinic connect. I have been struggling for over 2 years now..."

@maliakajeme i am so sorry! I hope someone has some knowledge to help.