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PD Progression, stages and what to expect

Parkinson's Disease | Last Active: 5 hours ago | Replies (31)

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@itchyw

I am seeing a neurologist tomorrow. I am still hoping to hear it is just stress. My biggest issue is intense anxiety coupled with apothy. I have a number of physical sxs and som pain. Reading your posts really helps. From all of my reading, over the six week wait to see the neurologist, it seems like PD takes quite an individual track and highly variable rate of progression. Is that accurate?

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Replies to "I am seeing a neurologist tomorrow. I am still hoping to hear it is just stress...."

Yes, and I know it varies because my sister and I both have it and our symptoms can be different. I hope your appointment answers a lot of questions.

Yep! You are right on all counts! I am 80 and was diagnosed in November 2023, and had spent 3 years reaching that diasnosis because the only sumptom I had was increasingly sever fatigue I had become totally bed-ridden, but after I d]got diagnosed that meant there was a treatment and while I'm not the person I was before this experience, at least I can do many normal things and feel so much better and grateful for finally knowing what I have and getting some things that help. Looking back, I think I've probably had it for 10 years. When I was diagnosed, I was at Advanced Stage PD. The only thing you can expect from PD with assurances is that you will have your very own ,Custom-tailored PD. You'll share lots of symptroms with others and can get helpful hints on how to manage individual things. There are lots of on-line resources . I fould myself getting far more e-mails that I could ever read, becuase I signed up for them. But it's like getting a drink from a fire hose. I recently cut my 2 zilllion newsletters down to 2 - on is Mayo Clinit and the other is Michael J. Fox. I've found those to be useful. There may be others and you can spend all day keeping up, but that would interfere with exercise, which is extremely important, and I'm going to sign off right now and go do my sstretches for my back. I wish you the luck I have had in finding excellent medical care and support from friends and family.