@jeffreykassover1, I moved your question to this existing discussion:

- What are your experiences with lenalidomide (Revlimid) for MDS?https://connect.mayoclinic.org/discussion/what-are-your-experiences-with-lenalidomide-for-mds/
I did this so you can connect with others talking MDS with 5q syndrome and treating with lenalidomide.

Also see this related discussion:
- Anyone have or heard of MDS with 5q-syndrome?https://connect.mayoclinic.org/discussion/anyone-have-or-heard-of-mds-5q-low-risk/

Jeffrey, have you changed treatments?