1. < Gynecologic Cancers

Uterine Cancer with brain metastasis

Posted by Mdotsie @mdotsie, Nov 17, 2016

I have had two metastatic brain tumors. Surgery for the second one was in January. Due to extreme vertigo, I have not been able to resume much of my normal life. My neurosurgeon says eventually this may correct itself but meanwhile I have to live with it. This is getting harder the longer it goes on. I would like to hear from others with similar issues and know how you are coping with it.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 1, 2018
In reply to @vsinn2000 "As hard as it is, I've learned I can no longer be wonder woman. I have..." + (show)
@vsinn2000

As hard as it is, I've learned I can no longer be wonder woman. I have to admit to being tired, take naps, stop micromanaging everything and worst of all.... throw out my lists of things to be done. Following my own advice on resting and letting the other stuff go was my biggest challenge but my most successful coping strategy.
Be kind to you,
Vicky

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@vsinn2000 Vicky,

Such a great post! I wish I could "double-like" it!

Teresa

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stparker54 | @stparker54 | May 14, 2020

When I had renal cell cancer, it metastasized to my brain. Instead of surgically removing the lesions from my brain, the doctors treated them with non-invasive Cyberknife, It's a robotic machine that sends targeted radiation to kill the cancerous cells in the brain, without damaging the healthy brain cells. I had three of these treatments in 2010; they lasted about 45 minutes each and then I would go back to work. It's been 10 years since I've been free of brain cancer. Susan54

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goldengirl2 | @goldengirl2 | Oct 16, 2020
In reply to @stayinghopeful "She’s had the tumor removed and is scheduled for stereotactic radiation surgery on 1/12. She has..." + (show)
@stayinghopeful

She’s had the tumor removed and is scheduled for stereotactic radiation surgery on 1/12. She has no cancer anywhere else. We are looking for some direction as this is very rare. 2nd opinion or any suggestions as to treatment is what we are after. Have heard her cancer might respond to keytruda but the chemo oncologist says chemo and keytruda are not shown to be beneficial at this time as there is not evidence of any active tumor right now.

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this has just happened to me. tumour was removed form cerebellum radiation is suggested but oncologist says as there is no evidence of it i am better to wait. How did you make out with yours staying hopeful? I notice his is from 2017 . so weird to have it show up in the brain eh?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 17, 2020
In reply to @goldengirl2 "this has just happened to me. tumour was removed form cerebellum radiation is suggested but oncologist..." + (show)
@goldengirl2

this has just happened to me. tumour was removed form cerebellum radiation is suggested but oncologist says as there is no evidence of it i am better to wait. How did you make out with yours staying hopeful? I notice his is from 2017 . so weird to have it show up in the brain eh?

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Hi @goldengirl2, I'm tagging @stayinghopeful so that hopefully she will see that your question was meant for her.

I'm glad that they were able to remove the tumor in the cerebellum with clear margins. Did you get two different opinions from the doctors: one saying to follow-up with radiation and the other suggesting to watch and wait? What are you considering?

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stayinghopeful | @stayinghopeful | Oct 17, 2020
In reply to @goldengirl2 "this has just happened to me. tumour was removed form cerebellum radiation is suggested but oncologist..." + (show)
@goldengirl2

this has just happened to me. tumour was removed form cerebellum radiation is suggested but oncologist says as there is no evidence of it i am better to wait. How did you make out with yours staying hopeful? I notice his is from 2017 . so weird to have it show up in the brain eh?

Jump to this post

Stereotactic radiation and Keytruda kept it at bay for 2 years. Recurrence in March spotted an routine scan of this year and treated with radiation and Lenvima, which is approved for uterine cancer. So far so good. Remaining hopeful. Good luck!

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