← Return to Had Septical Myectomy six Months ago and it returned

Discussion
Comment receiving replies
@karukgirl

@holly1275, maybe this will be a helpful link:
https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/contact-us
Mayo Rochester (affectionately known as the Mother Ship) is the leading center of excellence for septal myectomy. World wide leader.
I would heed the advice of @walkinggirl and "RUN" to check if your insurance is accepted at Mayo Rochester. I know Medicare is, and many advantage plans as well.

This is not something you want to trust to just any hospital, as you now know.
I encourage you to put yourself first in this case, and be your own best advocate. You need the best surgeons for this surgery. This should not be about location or convenience. It's your life and future.
Please read the response you got from @dbrima. She has been through an emotional war and came through...not without scars for sure. From actually getting worse on Camzyos to a failed septal myectomy in Texas to ending up at Mayo Rochester...she knows for certain how important it is to have this procedure performed by experts. Experts who do many not just a few!
I cannot emphasize enough... you need a COE Center of Excellence for a septal myectomy. Period.

Jump to this post


Replies to "@holly1275, maybe this will be a helpful link: https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/contact-us Mayo Rochester (affectionately known as the Mother..."

Unfortunately I tried, and I have the worse insurance and it covers only a few places here in FL.
With limited insurance I had it done here in Fl at a hospital that has done a number of Septical Myectomy, my First choice would have been Mayo in Rochester, but that was not going to happen they don't cover it there.
I prayed that the out Come was going to be better than this , I tried all medication including camzyos, it didn't work and other medication .
nothing worked ..
My cardiologist recommended Mayo Hospital but again my insurance doesn't cover it
And I am not on Medicare I am not old enough for that yet.
I am devastated to know that it's has come back but sometimes in life we try and things don't turn out the way it should.
I can hope and pray that things get better
Thank you for your response and advise ...