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Had Septical Myectomy six Months ago and it returned
Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 23 3:19pm | Replies (28)Comment receiving replies
Thank you for remembering me, Dr. Derani at the Mayo Clinic told me he has to do “re-dos” all the time. In my case, my cardiologist in Texas was afraid to remove too much tissue. Dr. Derani took 10 x the amount. I have recovered but not emotionally. I feel confused, anxious, and sad. I am working out a little and trying to raise my son. Next week I get an echo and will write if this surgery was successful. I had it this past July and although I have had good reports from visits with my local cardiologist, I have not had an echo yet. I am getting blood work done next week as I am worried I am not feeling well. Hopefully, it’s just potassium or water weight. My thoughts and prayers are with you and I understood the magnitude and weight of all of this. What a dreadful disease!
Replies to "Thank you for remembering me, Dr. Derani at the Mayo Clinic told me he has to..."
Thank you for sharing..
I hope things are well for you and you get good news on your upcoming tests .
I wish I was able to go to Mayo in Rochester to have had my Septical Myectomy but my insurance wouldn't cover it.
I had mine done by a surgeon that has experience here in FL
he was recommended by my cardiologist .
I can't explain how I feel confused angry , sometimes I blame myself it a emotional roller coaster.
But I am trying to stay positive so down and try to find out what to do from here .
Hearing your story broke my heart,
Thank you so much for the kind words, and God Bless
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Oh @dbrima! I have never forgotten you!
You touched my heart and I prayed for you many times. I often wonder how you are doing.
Thank you for reaching out and offering your experience to someone who is facing what you did and has fear like you did.
I hope your tests and echo come back with only positive results. You certainly have been through the proverbial wringer.
You have a lot on your plate with a little son, which I am sure is a big responsibility, but you have to put your health first...otherwise you can't be the best mom you want to be.
So do take care of you! And please come back share how you are doing.
Your courage to go through this twice and be able to share with others, means more than you know. You never know how your story will impact someone else who needs to hear what you can share.
God bless you too!