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Burning Mouth Syndrome: Anyone had success with compounded mouth rinse
Skin Health | Last Active: Jun 1 9:14pm | Replies (53)Comment receiving replies
The research doctor cannot be reached by phone or portal. She is part of VCU, but the school, not the hospital, and I am getting no help from my terrible PCP. I have sent an email to the only email I have for the entire clinic, but it's up in the air if she gets it. I finally got brave and just put it on my tongue and tried hard not to let any go down my throat. I am on diazepam and thought it was helping a bit, but it wasn't. I tried to talk to a friend last night, and today I am in agony. My mouth is torn to pieces, and my tongue. Nothing is helping. I do not know how bad everyone's BMS is, but this is the most indescribable pain, and I live with severe nerve pain with 2 different types that blanket my body, plus necrosis, vein disease, and a lot more. The mouth has the most nerve endings, so I suspect that is why it is so bad. I am going through 400-599 Xylitol tabs in less than a week now. I feel like I am losing my mind. Thanks for answering anyway. So far, the 1 Clonazepam didn't do anything. I have never had anything so unnerving and wickedly painful in all the years I have been ill. I am tough, but this is knocking me flat, plus I am sick of being unable to talk and be social.
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I understand exactly what you are talking about. I searched for answers for over 4 years and tried many things. My best move, recommended by emergency room doctor, was getting the esophagus scope. I was diagnosed with silent acid reflux and Barrett’s. It took 2 months of acid reflux treatments (high dose ppi and sucralfate liquid) to finally start getting relief from the hot burning. I still take the original treatment but when burning breaks thru I dissolve a Pepsid complete OTC tablet in my mouth and it’s not long before the burning stops. I sure did suffer. There is help! There is relief. When asked if I had reflux I always said no. I never knew reflux could be silent. You could be having acid and or bile reflux. Not an overnight fix. I am very thankful!