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Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: 3 hours ago | Replies (66)

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@msh466

I have smoldering multiple myeloma. Not sure how long I had MGUS before it progressed. Found totally by accident. M Protein is 2.0 and 15% plasma cells in bone marrow. Many do not progress past MGUS. This is a condition they will have the rest of their lives. Get tested often. Follow ups often and wait and see what develops if anything. No symptoms or illness with MGUS. So catching it with blood tests is usually by random. I too was taken aback seeing Hemonc doctor. Felt overwhelmed like this is it. But it’s been stable now for over a year. No progression or lesions and calcium normal. Abnormalities in M Proteins. Super high IgA. But they haven’t moved much. Blood work is due in May. Always a tense time waiting for results. A lot of this is mental. It’s a roller coaster of emotions.

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Replies to "I have smoldering multiple myeloma. Not sure how long I had MGUS before it progressed. Found..."

How do they test for plasma in your bone marrow?

Thank you for sharing.

@msh466
I think anxiety leading up to our schedule blood tests is pretty universal. How do you cope with that stress?