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Had Septical Myectomy six Months ago and it returned

Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 23 3:19pm | Replies (28)
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@karukgirl

Hi @holly1275
I am so sorry to hear about your obstruction from HOCM coming back after going through a septal myectomy.
That has to be shocking and frustrating. No wonder you are feeling devastated!

There are a couple of members here on Connect that had the same thing. One of them recently, just last year.
In both cases their septal myectomy was performed in a facility that did not have the experience of the Mayo Clinic Rochester, or Cleveland Clinic, and was not a COE (Center of Excellence) for this precise procedure.

I see that we have communicated a couple of times last year and you were thinking of trying to get an appointment at the Mayo Clinic in Rochester.
Where was your surgery performed?
If you want to read the recent members who had this same scenario, read this:
https://connect.mayoclinic.org/comment/1104597/
and this:
https://connect.mayoclinic.org/comment/1131128/
@dbrima had the misfortune of having this twice and had a rough road to walk. I hope you can read some of her posts and get some good information from her experience.
Have you considered a second opinion?

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Replies to "Hi @holly1275 I am so sorry to hear about your obstruction from HOCM coming back after..."
holly1275 | @holly1275 | Apr 7 11:41am

My surgery was on Oct 2 at a hospital in FL.
I spent a total of twelve days in the hospital
I tried to get an appointment at Mayo Clinic here in FL but they didn't
accept my insurance.
It was an experience, that I don't want to do over again.
I had an appointment on April 2nd with my cardiologist and asked her if
she could do another Echo as my health wasn't what it should be.
That's when she called me on Friday and confirmed my suspicion, that it was
back.
It is back up Moderate, with SAM, and hyperdynamic ..
With severa
LVOT is Peak PG Of 46 mm hg at rest and 120 mm hg with Valsva ..
Moderate Mitral regurgitation ..
And pulmonary 40
As far as a second opinion I haven't looked into it as yet .

I thank you for your information you have sent..
God Bless

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