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Anyone have invasive squamous cell carcinoma of the vulva?

Gynecologic Cancers | Last Active: Apr 16 7:56am | Replies (26)
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@westnp1

I had this diagnosis in 2014. It was stage 3 when I found it. Chemo and lots of radiation. They gave me a 40% chance, and I'm still here!

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Replies to "I had this diagnosis in 2014. It was stage 3 when I found it. Chemo and..."
andwho | @andwho | Apr 7 1:01pm

I was diagnosed with vulvar cancer stage 1b in may 2023.
No surgery. I had 32 rounds of radiation & 2 rounds of chemo. They were suggesting 5 rounds of chemo but I had a hard time with it. My pet/mri comes back clear but it is always in the back of my mind that some day it could come back. However I do have lots of changes down there.
Soreness & tenderness & irritation are my side effects. If you need to ask or share anything please do!
Always great to share for support!

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andwho | @andwho | Apr 9 1:20pm

That is wonderful & encouraging for all of us to hear that battle vulvar cancer. Do you suffer with any side effects or just feeling different down there?
I have irritation & soreness.
And if you do can you suggest anything to use?
Thank you!!

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