I have smoldering multiple myeloma. Not sure how long I had MGUS before it progressed. Found totally by accident. M Protein is 2.0 and 15% plasma cells in bone marrow. Many do not progress past MGUS. This is a condition they will have the rest of their lives. Get tested often. Follow ups often and wait and see what develops if anything. No symptoms or illness with MGUS. So catching it with blood tests is usually by random. I too was taken aback seeing Hemonc doctor. Felt overwhelmed like this is it. But it’s been stable now for over a year. No progression or lesions and calcium normal. Abnormalities in M Proteins. Super high IgA. But they haven’t moved much. Blood work is due in May. Always a tense time waiting for results. A lot of this is mental. It’s a roller coaster of emotions.

@diana1958 Welcome to Mayo Clinic Connect! It is almost always a surprise when we are handed an unexpected medical diagnosis. And certainly can be very anxiety-provoking as we come to terms with what we might be facing.

There are several conversations you might find useful to read through, regarding MGUS. Here is one: https://connect.mayoclinic.org/discussion/diagnosed-mgus/
When you go to the Blood Cancers support group, you can type in MGUS in the search bar and then choose a discussion to read.

MGUS rarely advances beyond just that, and the most common treatment is a "watch and wait" approach. It is a condition most commonly found when our medical team is looking for/reviewing something else entirely. Labwork is done routinely to monitor critical numbers. I'm glad your PCP is sending you to see a hematologist/oncologist, but please do not stress about it all. Be gentle on yourself.
Ginger