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Post viral syndrome peripheral nerve hyperexcitability

Neuropathy | Last Active: Apr 16 12:53am | Replies (58)

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Hello and thanks for the response. Both of my kids are in daycare so they are a constant germ factory. Covid rates in my town were peaking at the time I got sick. Also I saw lots of people in the hospital at that time with covid. I didn't have any home tests so I cannot say for certain but that's my best guess.

I have had chicken pocks but not shingles and I'm not sure about EBV.

CBC (Complete Blood Count): Normal

CMP (Comprehensive Metabolic Panel): Normal, except slightly low potassium (3.4)

CRP & ESR: Low (indicating no active inflammation)

CK & Aldolase: Normal (no evidence of muscle breakdown)

Vitamin B12: Elevated from supplementation (1900)

Autoimmune Panel:

ANA, SSA, SSB, CCP, RF, and Anti-thyroid peroxidase: All negative

Serum & Urine Protein Electrophoresis: Normal, except slightly low alpha-2 band (0.5)—not clinically significant

Skin Biopsy: Normal epidermal nerve fiber density (no small fiber loss)

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Replies to "Hello and thanks for the response. Both of my kids are in daycare so they are..."

Was B6 checked?

Also no alcohol or tobacco use

@josh701
I can totally relate with daycares being Petri dishes and making parents sick with all of the viruses they were never exposed to (had this happen the first 2 years my son was in daycare).

Did your neurologist tell you to stop the B complex supplements due to high b12 toxicity in your bloodwork? That causes neuropathy.

Are you on a high protein/low carb diet?

@josh701 thanks for sharing the above. Sounds like something very similar to myself.

Have had probably benign fassiculations since last October. Negative on all the MRI EMG and other tests. Bloods all normal with no deficiency in any mineral or anything of concern. I have been supplementing similar to you but have had to cut back the exercise significantly due to flaring up post workout. Makes me think it’s definitely something from an inflammatory perspective post viral possibly have had some flus over the past year but nothing significant possibly was something viral that set it off. Frequently get burning sensation in my feet and legs mainly and fasciculations within the legs. Thanks for sharing good to hear other people managing this journey as well

@josh701 I found your post and I am just starting this journey. Lots of twitching in my legs and heavy feeling in R leg and L arm starting 5 days after a viral illness. My daughter had the virus a couple weeks before me and had a numb hand with pain along the nerve for a week too. I am hoping this is all virus related with nerve excitability. So far CK is normal but pending other labs. How are you now?