Hello; I'm just joining this group today. I wanted to comment on subject of sharing our feelings about donors and undergoing transplant and survival.
I also find that when I share on FaceBook I rarely get likes or comments from others. People who have not walked the walk do not know what we have gone through to survive. I think people realize that crictal illness does not discriminate. It can happen to anyone at anytime. People do not know what to say or react to illness. It is the same way with blindness; people can say the darndest things to me when they find out I am blind. Some people talk really loud to me like I am deaf also. They talk to my husband instead of me like he knows all the answers and I do not know anything.
When one struggles to survive a critical illness like cancer, transplant surgery, or millions of other diseases, they need all the support they can get. Some times it takes a village to provide support for the situation. I am so glad I have found all of you and can share my feelings with people who have walked the walk.
Thanks to all who have responded. If I can be of help, I will be happy to answer all questions.