So true! Really complex what we are dealing with and short of our very own Dr. House to put all the pieces together we are hammering together a combo of self directed care with the best medical experts we can find, plus compounded interests from fellow patients in support groups, phew! it's a lot!! Oh, and all the myriad differences of how these diseases present in so many different individuals. You bet, I'll circle back to you. Generosity of sharing experiences makes this group valuable. I was able to identify most closely with your descriptions and it feels like a missing piece of my puzzle. Let's definitely stay in touch.

@blm1007blm1007 I'm just trying to find out about the bacteria after reading your comments, I guess the bacteria can be found via a sputum sample? Also, I'm just guessing - perhaps coughing up the mucus caused by the lung bacteria caused the hiatus hernia, and the bacteria need to be treated. Do you have any experience of this? Aside from the Diaphragmatic Breathing Technique to treat hearburn and reflux (see youtube), there is a new keyhole surgery for treating hiatus hernia called the LINX procedure, but I wonder if treating the bacteria instead would resolve the symptoms.