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Does anyone have splenic marginal zone lymphoma?

Blood Cancers & Disorders | Last Active: Apr 17 12:26pm | Replies (33)
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@nboulet

I have now been diagnosed with Stage 4 Marginal Zone Lymphoma Cancer. I have had MGUS for the last 20 years. The last few years my MGUS numbers spiked and I am also dealing with progressive neuropathy for the last 15 years. I am about to do 3 rounds of Chemo for the Marginal Zone Lymphoma Cancer. The first 2 rounds will be with the drug BENDMUSTINE and the 3rd round will be with the drug RITUXIMAB. How much worse will my neuropathy get as I have no balance or motor skills as it is?I also have a walker which I absolutely need.

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Replies to "I have now been diagnosed with Stage 4 Marginal Zone Lymphoma Cancer. I have had MGUS..."
Colleen Young, Connect Director | @colleenyoung | Apr 12 2:44pm

@nboulet, I'm sorry to hear that MGUS progressed to marginal zone lymphoma. Unfortunately, both bendamustine and rituximab can sometimes cause or worsen peripheral neuropathy,

Have you talked to your oncologist about your concern about the potential neuropathy side effect? Did you have your first treatment?

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