How frustrating @andilynn to not be able to get the diagnostic imaging to help get to the bottom of the issue. I'd like to bring @katemn @predictable and @dawn_giacabazi into this conversation to see if they may have some thoughts about advocating for getting access to testing etc.
@sabtahis as someone with SMZL, might you have something to add?

Andilynn, do you have access to an occupational therapist? I wonder if an OT could help by assessing your mobility at home and making the daily routine a bit easier until you get the solution to the back issue.