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@ina2022

Hi Mikemp,
I experienced the same fluctuations. I was diagnosed with ET November
2022. Started out with 500 mg per day. Unfortunately one pill did not
work. Increased to 1000 mg per day. My side effects are not bad. Sometimes
a little tired in the afternoon. My numbers fluctuate between 350 and 430.
My blood work looks fine otherwise, so my Dr. was not worried. My next
check up is late June. Hope my numbers are lower. Have you asked your
Dr. about it? I have the Jak2 mutation, will be 70 years old this month.
Otherwise I am in pretty good health.

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Replies to "Hi Mikemp, I experienced the same fluctuations. I was diagnosed with ET November 2022. Started out..."

Thank you for your reply. I am also 70 and I spoke to my hematologist about it. He said not to worry as it happens. It was just odd since I had seen a steady decline. Nice to hear about your experience. It helps to ease the fears that come along with it.