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My doctors know nothing

Neuroendocrine Tumors (NETs) | Last Active: Apr 2 3:27pm | Replies (59)

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Profile picture for laree @laree

Thank you! His is nonfunctional KI67 25%. It was found my accident. So quite shocking. He just finished 1st cycle of Captem. On a break right now. Adding the Tem days he became quite anxious. Overall he tolersted the cycle pretty well. I have heard sometimes people get more side effects on the second cycle. I have to say it is diffcult navigating all tbis because he has a physical job. Not at a desk and not always alone. A month or so prior he has been making protein veggie smoothie shakes every am and he says he overall feels better. Should of added veggies years ago. He is eating smaller meals. He hasn't had to use nausea medicine yet. But he is dealing with anxiety. Thank you for listening.

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Replies to "Thank you! His is nonfunctional KI67 25%. It was found my accident. So quite shocking. He..."

@laree I have carcinoid lung cancer. Are you speaking of pancreatic cancer? It gets confusing in here. I just wanted to add that I found out yesterday that sometimes people live with NETs their whole life, and it is only discovered if an autopsy is done on them. Most people are diagnosed after a bone scan or MRI for another condition. I am drinking smoothies as well, as I too am nauseated. I am horrible about adding vegetables to my diet. 😔 I'm trying to do better. Thanks for the encouraging post.