Just diagnosed with a 8mm spiculated nodule In Left upper lung

Posted by thoughtprocess @thoughtprocess, Mar 16 8:44am

I also have added area of GGO in subpleura . Was a heavy smoker for most of my life and my mother had lung cancer and her mother too . Not a great picture? Any chance it might be benign? Many thanks 😊

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@guyjeff123

Hi Lisa. I clicked on the envelope in the upper right corner of my screen, and I repeated clicking on the envelope several times but I didn't see " Compose," nor a black oval. Am I doing something wrong? Is it in my settings. I truly want to send Melisa @meliarg my email. I might can direct her to a source who can answer her questions, if I can't. Please help.
God Bless You
Jeffrey

Jump to this post

Hi Jeffrey, @guyjeff123,
Sorry for the confusion. I think there are some differences between the computer version and the phone version of Mayo Connect.
If you see the person icon in the upper right, try clicking on that. Then do you see Messages in a list of options?

REPLY
@susies215

Dec 2022 found 3.5 spiculated mass. Feb 2023 open thoracotomy to remove right upper lobe. Had cancer in situ at margins of surgery. They took a wait and see and turned into more invasive cancer. Spread to carina, and left main bronchus. March-April of 2024 had 5 days a week of radiation for 6 weeks. Now spread all over airways of left lung , in 2 lymph nodes and trachea. Just started dual immunotherapy. Are holding off on chemo cause I also have been diagnosed with mycobacterium abscessus which is horrible and a very lengthy treatment with 3 toxic antibiotics. I am not in a good place right now

Jump to this post

@susies215 I'm so sorry you are going through all of this. You've had a very difficult journey through your cancer. I believe my journey is just starting. I am very grateful to you for sharing your story with me and others. I'm grateful to you for the comments you made concerning what's going on with my own lung concerns. You're a very strong person and I will be praying that You will be cured. I understand why you wouldn't be in a good place right now after what you stated in your comments. Please know that you have at least one person praying for a successful outcome from here on out. God bless you and heal you.

REPLY
@lls8000

Hi Jeffrey, @guyjeff123,
Sorry for the confusion. I think there are some differences between the computer version and the phone version of Mayo Connect.
If you see the person icon in the upper right, try clicking on that. Then do you see Messages in a list of options?

Jump to this post

@lls8000 Hi Lisa. I tried what you said and I still don't see the "Messages" after I click on the icon. It's okay though, as the person I was wanting to have a private conversation with must have been successful in setting it up on her end, because we are now communicating through email. Thank you for all you do as a Volunteer Mentor and thank you for sharing your own journey with cancer and thank you for your comments on my situation. May God bless and heal you.

REPLY
@guyjeff123

@susies215 I'm so sorry you are going through all of this. You've had a very difficult journey through your cancer. I believe my journey is just starting. I am very grateful to you for sharing your story with me and others. I'm grateful to you for the comments you made concerning what's going on with my own lung concerns. You're a very strong person and I will be praying that You will be cured. I understand why you wouldn't be in a good place right now after what you stated in your comments. Please know that you have at least one person praying for a successful outcome from here on out. God bless you and heal you.

Jump to this post

Thank you for your kind words and prayers. I will pray for you as well

REPLY
@meliarg

@lls8000 @guyjeff123 Hello everyone, thank you for your warm welcome and kind responses. Lisa, it's an honor to meet you. I've read many of your posts and replies, giving strength, wisdom, and love to many members. I felt like I knew you before you replied and I really hoped to catch up with you sometime, but I didn't want to upset you by writing to you directly. I apologize in advance if I've violated the forum rules; that was not my intention at all. I'm from Argentina, and I automatically translate the page and all comments using Google, so I'm sure I'm missing a lot. If there's a link where I can go to read the rules or terms, I would be very grateful. I apologize if I've put any member in an awkward or uncomfortable position. I've read that Jeff has been following up with his trusted doctor about a lesion from which two "legs" appear to be emerging, and that the same thing appears to be happening in different CT scans of his nodule. That's why I took the liberty of sending you a private message, that was the reason. Of course, based on everything I've read and heard, the spiculation and many other signs, combined with that, makes her lung nodule highly suspicious for cancer, and I understand. I think I was just looking for hope right now, because the doctors certainly aren't giving us any. It's also difficult to ask them: they're always short on time and don't get involved either, they don't want to. You know you have the right, but sometimes they make you feel stupid, but comparing images or looking for answers in "similarities" or "coincidences" isn't the solution either. We're very confused because we've been told many things throughout this process that ended up being different, and we can't change providers or doctors; our insurance doesn't allow it. On the other hand, although I'm a true believer and try to leave everything in God's hands, right now, if my mother were gone, I wouldn't be able to continue. Sometimes it's difficult to explain the particular and complex situations here, but I feel like I've been able to get to know many of you, your stories, your families, and your support, and that comforts me. I'm alone. Fortunately, Mom has a group of friends who support her. It hurts me that I'm not up to par, but I've fallen into a deep depression.
Regarding your question, Lisa, the truth is that Mom doesn't feel at all comfortable with surgery. In this case, the biopsy would be performed intraoperatively. The pathologist would evaluate the tissue sample, and if it was malignant, a lobectomy would be performed. Imagine how she felt when they not only told her that a needle biopsy would be inconclusive, a bronchoscopy would also be performed (although it will be performed on Thursday, but not for diagnostic purposes), and, furthermore, that surgery no longer refers to a "wedge" or a "segment," but rather an entire lobe. She feels lied to in some way. And I understand. She tries to remain optimistic; she's always been like that and has been through some very difficult things, but sometimes I see her fading away. We feel depressed and lost. Thank you for your support and understanding. I apologize if I broke any rules; that wasn't my intention. Health, much health, love, and gratitude to all who have cared, to all who are fighting a thousand and one battles, to all who wake up every day and choose to face life. My sincerest love to all, Melisa.

Jump to this post

Hi Melisa, @meliarg , You didn't break any rules. You are supporting others while you work through your own complex situation. That's one of the strengths of Mayo Connect; members supporting members. I'm glad that you joined us.
I'm sorry to hear that you and your mother are still unsettled regarding the doctor's recommendation. Keeping in mind that each country functions differently when it comes to healthcare treatments, norms, and structures, I'm sure this is difficult for both of you. IF she does have the surgery, wedge or lobectomy, please understand that many people have these surgeries, and go back to living normal fruitful lives. I don't want to minimize the recovery, but if she is generally a healthy person, she can likely look forward to feeling better in the long term. You may be able to have a discussion with the doctors, and stress what's important to her long term. One being, maintaining as much lung capacity as possible.
Your love for each other shines through in the photo that you added. You are both beautiful strong women, and you are fortunate to have each other. Sending hugs to you.

Again, you didn't do anything wrong at all. If you are still interested, here is a link to the guidelines: https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

REPLY
@lls8000

Hello Gary @truckerman123 , Welcome to Mayo Connect. Thanks for sharing your story. I'm glad that you are doing well, and that the screening process was successful in catching yours early. Did your recovery process go well? How long ago did you have the surgery?

Jump to this post

Hello Lisa,
I had my surgery on 02/17/2025 and was discharged on 02/26/2025. They had to keep me 4 extra days due to the fact that the DR. accidently punctured a hole in my left lower lobe with one of the robotic arms. My recovery was going great until around 3/15/2025 when i got the Shingles on the same side as my surgery. Then about 10 days later I developed a blood clot in my left upper extremity.
My left arm and side have swollen significantly.
So now they are treating all 3. But the shingles are hurting the worse.

REPLY
@truckerman123

Hello Lisa,
I had my surgery on 02/17/2025 and was discharged on 02/26/2025. They had to keep me 4 extra days due to the fact that the DR. accidently punctured a hole in my left lower lobe with one of the robotic arms. My recovery was going great until around 3/15/2025 when i got the Shingles on the same side as my surgery. Then about 10 days later I developed a blood clot in my left upper extremity.
My left arm and side have swollen significantly.
So now they are treating all 3. But the shingles are hurting the worse.

Jump to this post

Oh Gary, @truckerman123 , you've had quite a hard start to the year! Your body has been under so much stress. I hope things are starting to improve for you. One day at a time.

REPLY
@stace32832

Hi there,
In 2017 discovered cancer in right Lung, I was on Tagrisso until August 2024
when I found it had spread to T10 of spine. Latest PET scan showed it
is now in adrenal gland and left hip.
I am considering immunotherapy treatment hoping to finally get
rid of it.

Jump to this post

Hello @stace32832, welcome to Mayo Connect. Sorry to hear that the Tagrisso is no longer working for your cancer. Progression is scary, but it's good to hear that you have the option of immunotherapy. The treatments can be life-saving, but certainly come with their own set of risks to be assessed along with your doctor.
Are your doctors hopeful that the immunotherapy will be effective for you? Are you a good candidate?

REPLY
Please sign in or register to post a reply.