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Diagnosed with sarcoma? Let's share
Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.
As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.
Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?
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HugInterested in more discussions like this? Go to the Sarcoma Support Group.
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...continuing radiation therapy with 4 more treatments to go out of 25. No side effects so far, except being tired. Have moderate to severe arthritis in lower back (lumbar 3-5) previously for 3 years or so. LMS is located in pelvis left side next to the psoas muscle close to my lower back. Pain in both areas enough for some mediation. No pain while sleeping or in a lounge chair. I've fallen several times in the last 10 weeks or so due to some pain and numbness in my left leg and with no consequences. I do use a 4-wheel walker. The biggest problem is trying to get up after falling. I am very pleased with the Kaiser system so far. My surgeon has a lot of experience with cancer patients. I've seen an oncologist, surgeon, my PCP, neurosurgeon, and pain specialists. In my opinion I am getting great care.