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PD Progression, stages and what to expect

Parkinson's Disease | Last Active: May 16 12:57pm | Replies (38)

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@windyh

Is anyone with PD, or know of someone with PD who describes themselves as having "brainfog"? A feeling of not being fully present mentally, confusion, weakness, fatigue, out of focus eyes? - with some weakness & a lack of stamina? Thank you. It isn't constant, but it does occur often

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Replies to "Is anyone with PD, or know of someone with PD who describes themselves as having "brainfog"?..."

Yes, I often have brain fog and I am always tired. I have had double vision for several years, long before I was diagnosed with PD in June of 2024. I can only go for walks for about 1/2 mile, but I used to walk 2-3 miles every day, due to my legs getting stiff. It has changed my stamina, strength, and memory.

I live with those symptoms every day and it is very frustrating. My eyes have double vision, blurring and I simply can't read as good. Brin fog is frustrating because it interferes what what I want to do. People close to me think I have loss of memory problems. Stree raises havoc with elevating my symptoms. I don't want to do anything but stay at home. Medications also adds to these symptoms. Every time I talk to my doctor he says i have to live with. How I wish I could think right and live well.

I'm being evaluated for PD at Mayo. I've dealt with this on several occasions.

Yes this is just starting with my husband. Diagnosed 1 year ago im sure he has had it 5? Years. Hes on carbadopa/ levadopa But lately having low blood pressures weakness, confusion say wrong words for things. He says everything is dark it reminds me of a stroke and he gets very rigid when this is happening. Hes been in the hospital 3xs