Alternative incontinence treatments?

Posted by anosmic1 @anosmic1, Mar 30 6:53pm

I'm about ready to consider alternative approaches to incontinence. RP surgery was 14 weeks ago, and I had had 3+ weeks of physical therapy and a month of Gemtesa. My one added challenge is that there had been some spread to the bladder neck so I'm sure they removed some of that. Still, changing my Depends in the men's room stall at work is getting old. (Age 67, Gleason 9 {4+5}, latest PSA undetectable)

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

.The sling is an option If you’ve had radiation the sling may not work..

Bulkamid is another option not as widely used on men

Another choice is ProACT. It has been discussed in this forum recently. They insert a couple of balloons in your body where your prostate was And they can inflate and delight them to match what you need.

The AUS (artificial urinary sphincter) is the last option to consider. It is not 100% blockage, there can be leakage.

Not sure I could say 100% leakage proof about any of the products mentioned they just improve it a lot, close to that

Contact a urologist to specializes in incontinence. They are the ones to talk to about this.

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Had my RP in October of 2023. Smartest thing I did was to find a pelvic floor PT who specialized in men. Very hard to find, there are two in the Boston area. After a year I found this practice and made a huge difference.

She took my leakage from 2-3 pads a day to most of the time zero. Running and the gym are an issue but its 50% improved.

It was hard work and went far from standard Kegels. I now foresee a day of actually being dry. If you want the name of the Dr message me.

Also for ASO's to a point made you will still leak, it's not perfect. Don't give up, it can get better.

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I have been living with an Artificial Urinary Sphincter for almost two years now and only use a small pad per day or less. This is after pelvic floor the raphy that I did not find effective. I am not stopping to drink fluids after 6:00 pm so I am not woken up every two hours and it is working better. Last night I slept 4 hours with having the pressure wake me up.

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I am very similar to you 12 weeks post RARP, two weeks of catheter, I am also on Gemtessa (not sure if I should refill it or not)
From what I have come across incontinence can last between 3 and 18 months for many men. We are just getting into the third month. I am going to give mine more time. I see a pelvic floor specialist pt for which I am very thankful.
I can see I am making progress ( morning are better, less tress incontinence, I am working on bladder re-training) I have a long ways to go but am inclined to keep working on pelvic floor rehab, bladder retraining, core training etc before I try an alternative
I wish you good luck

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I am 2.6 weeks out from prostatectomy, 2 weeks from catheter removal. My bladder drains freely without me knowing. I feel urine when it is exiting the penis, usually when I get up from a chair. I then try to get to the toilet.
I have no sensation from my bladder.

I have been doing the exercises to the point that I am almost sore. I can feel good contractions when I do the exercises, but half the time urine spurts out while doing them.

I had no continence issues prior to surgery.

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@frankjohnson1

I am 2.6 weeks out from prostatectomy, 2 weeks from catheter removal. My bladder drains freely without me knowing. I feel urine when it is exiting the penis, usually when I get up from a chair. I then try to get to the toilet.
I have no sensation from my bladder.

I have been doing the exercises to the point that I am almost sore. I can feel good contractions when I do the exercises, but half the time urine spurts out while doing them.

I had no continence issues prior to surgery.

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You could find a pelvic floor physical therapist. They might be able to get that muscle working for you doing exercises differently. Sounds like it’s pretty serious though as if you’ve lost all control of sphincter.

Somebody in this forum was talking about using ProACT To stop their incontinence and It works 99% for them. The AUS works well too, but still leaks a little. Someone at the Advanced prostate cancer Ancan.com online meeting this week talked about how his AUS had recently slipped and was turned around and he has to use two hands to push the button to pee. He’s had it for a few years..

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@dmccarthy104

Had my RP in October of 2023. Smartest thing I did was to find a pelvic floor PT who specialized in men. Very hard to find, there are two in the Boston area. After a year I found this practice and made a huge difference.

She took my leakage from 2-3 pads a day to most of the time zero. Running and the gym are an issue but its 50% improved.

It was hard work and went far from standard Kegels. I now foresee a day of actually being dry. If you want the name of the Dr message me.

Also for ASO's to a point made you will still leak, it's not perfect. Don't give up, it can get better.

Jump to this post

Hello, it would be better if you could provide the doctor's name or email address.
Than you very much.

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@edinmaryland

I am very similar to you 12 weeks post RARP, two weeks of catheter, I am also on Gemtessa (not sure if I should refill it or not)
From what I have come across incontinence can last between 3 and 18 months for many men. We are just getting into the third month. I am going to give mine more time. I see a pelvic floor specialist pt for which I am very thankful.
I can see I am making progress ( morning are better, less tress incontinence, I am working on bladder re-training) I have a long ways to go but am inclined to keep working on pelvic floor rehab, bladder retraining, core training etc before I try an alternative
I wish you good luck

Jump to this post

Hello, it would be better if you could provide the doctor's name or email address.
Thank you very much!

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Frank
hang in there. my first two weeks was somewhat like yours and I had the catheter in for two weeks ( my surgeon is conservative and I am a little older perhaps)
I am no expert but for many, pelvic floor recovery takes time and careful progress.
Here is a link on how you might find a pelvic floor specialist
https://www.betterhealthpt.com/learn/pelvic/finding-pelvic-floor-therapists-near-me/
meanwhile, I am happy to share with you
. I am 11 weeks out but I tend to think of it as 9 weeks out since the catheter was in so long. Not only our prostrates removed ( and some surrounding tissue) , our bladders were cut and stretched and re-attached to the urethra and then trained not to hold anything anymore. All of this has to be re-trained

/ Additionally, for men, we have three 'valves' that control urine discharge, removing the prostrate and re-attaching the bladder leaves us with one 'valve': pelvic floor muscles. Women rely on pelvic floor muscles exclusively. For men, we need to learn to rely on pelvic floor muscles exclusively.
Additionally, we need to retrain our bladders to hold urine and not just pass it through.
I have learned from many on this board and others that at the beginning there is good chance of overdoing pelvic floor retraining, these muscles are not used to what we now expect, they get tired, getting htem to relax can be more of chore than getting them to engage.
I hope this helps

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