Diagnosed with sarcoma? Let's share

Yes. I had a pretty big tumor but was only in hospital 3 nights then rehab for a week

can I ask where the tumor was located

My husband has been diagnosed with undifferentiated Pleomorphic February 2024 and received 24 Radiation sessions

I have a Mycoid Liposarcoma of the Right Calf and I am scheduled for 25 Radiation Treatments - so far I have completed 12
Some fatigue ut generally feeling good - no pain
I am also in a Pre-Surgical trial for Physical Therapy to determine if this will help in the recovery after surgery

I had fibroblastic soft tissue sarcoma.Dr shawtz at Vanderbilt removed a 13.5cm tumor from my leg. I have lost most of the feeling in my leg. I donated the tumor to the mayo clinic and did a12 week fitbit cancer study.im doing an mri and cat scan next mouth.no one in my family has had cancer

Welcome, @kenroy. I moved your message about fibroblastic soft tissue sarcoma to the Sarcoma support group here: https://connect.mayoclinic.org/group/sarcoma/ where you can meet others with soft tissue sarcoma.

I'd be interested to hear more about the Fitbit study you did.

Did you have any treatment after surgery? How are you doing now?

I'm ok the hospital gave me a fit bit to wear for 12 weeks I was getting a Weekly report I haven't heard anything since the study ended I believe they want me to do it again in a year the case was forwarded to Dr.andrew folpe at the mayo clinic think you for reaching out

I got diagnosed with chondrosarcoma. I am 43 years old and will be 44 in a few months. Certainly hearing the C word is scary but I'm staying optimistic because freaking out or panicking does nothing so my thoughts are I will just work on it and get it cleaned out and move on with my life.

It started about 4 months ago with pain in the temple and a lesion found near the temple and also pain in a very fine line on my head and also pain behind my left eyeball and around my left nose area like sinus pain.

I'm wondering if there are things I should be eating or drinking to try to fight the cancer or prevent it from spreading or anything that is good for the cancer fight.

Any thoughts or advice are appreciated!

I have completed my 25 radiation treatments - and no adverse damage to the skin - I am scheduled for surgery May 5 - A flap of muscle and blood supply will be taken from my right quadricep to replace the muscle etc from my right calf - 7-10 days in hospital with the critical factor being the flap so ensure the blood supply is good and is healing properly - bedridden first 5 days and then slowly allowed to dangle the leg - surgery expected to take 10+ hours

I agree with staying optimistic - your body has amazing abilities to heal itself - I can't say enough positive things about the team at Mayo they have been with me every step of the way - I have a soft tissue sarcoma in my right calf the size of a soft ball - I have completed radiation - 25 treatments with no adverse skin issues - Surgery is May 5th and then can expect a long recovery to be able to walk unassisted - they say up to a year - I am already working with a Physical therapist to strengthen and improve flexibility -
One thing I have learned is to allow myself some time to just let is all out as well - a sort of emotional cleanse - do what your body tells you it needs.
I take curcumin 600 mg twice a day it is a good cancer fighter and anti inflammatory and I take milk thistle with it - also 20000 IUS of Vitamin D with Vitamin K