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DiscussionWhat I Learned From My Open Heart Surgery
Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 hours ago | Replies (36)Comment receiving replies
Replies to "Thank you @deanr for your kind words. It really is helpful to read about other people's..."
People talk about back pain. I did not experience that at all, I do not know why. My take is that different surgeons may have different techniques (Dr Schaff was my surgeon), or perhaps I have a strong core - back area muscles from my regular visits to the gym. I have been doing exercises like planks, bird dogs, dead bugs, bridges, and crunches at least 3X a week for 10+ years. These are not cardio and I had no breathlessness when doing them.
Hi Debra
Yes I have HOCM. I will be having a septal myectomy and possible valve repair at Mayo with Dr Dearani. I did a lot of research, AND I have the best PCP in the world- I mean really the best in the world, she met with me multiple times, once on the weekend, she watched videos from HCMA that I sent her, she found the updated 2024 HCM guidelines in the medical literature and helped me to understand what it said, she’s just been really great! I feel very lucky to have such wonderful support.
My story: I teach on a university campus so when I have to walk to my buildings or parking lot etc carrying my backpack with laptop etc I get sob. I was an avid pickleball and volleyball player and started not being to breathe and play like I had previously played and at the same time I was so vey tired. When I found myself taking naps in the evening I knew for sure something was not right. I never have allowed myself to take naps late in the day because it disrupts my nighttime sleep. My cardiologist ( I have HTN) finally sent me for a TEE and I was diagnosed with HCM.
I was told over the phone that HCM/HOCM was my diagnosis and referred to a “heart failure” clinic which just about sent me over the edge. But the clinic docs and staff are really top notch.
I am choosing the surgery because my quality of life is very important to me and I am almost 62. I need to have it now to for the best recovery.
Like a lot of people, the diagnosis makes a lot of sense to me on hindsight. I was always not quite able to keep up with my peers in athletics and the random chest flutters and dizziness make more sense too! I just ignored those symptoms because they were fleeting and random.
So I am looking forward to being able to play the games I love Pickleball and volleyball! It’s my social outlet, my sunshine and outdoors time and my regular exercise. I miss it so much and can’t wait to play regularly again.
I expect to be nervous but I am banking that the benefits will outweigh the few summer months of recovery!
I appreciate all the stories I have read. The more information I have the better prepared I feel. So thank you again for sharing.