Post craniotomy

Hi tbusker, I had a lot of strange sensations after my frontal lobe craniotomy. As a matter of fact, I am now 2 years and 2 months post craniotomy, and I still have odd sensations when touching any part of that side of my head. In my case the sensations lessoned over time, now it is only when I touch it.

I had a left sided craniotomy a year and a half ago. For six months the trigeminal nerve on the left side of my head would tingle. It was better at 3 months ,and then finally around 6 months I noticed it wasn't bothering me anymore.

didANY OF YOU HAVE RADIATION THERAPY AFTER YOUR CRANIOTOMY? i HAD A GRAD
3 . . RIFHT FRONTAL LOBE MENGENOMA DOCTOR WANTS TO DO PROTON RADIATION THERAPY TO KILL ANY REMAIN CANCER CELLS. I AM WONDERING IF THAT IS BEST AT THIS TIME OR WAIT TO SEE IF IT STARTS TO REGROW. DOES ANYONE HAVE AN OPINION OR ANY EXPERIENCE IN THIS MATTER?

I did not have any radiation afterwards.

I had a Grade 2 Oligodendroglioma. In my case they suggested no treatment, but I do have to have a MRI every 3 months forever

Same here. I'm not super excited about the MRI every 3 months. Worried about the possible health effects of that. I was offered a targeted med, but it has only been on the market for a few months and can have effects on the liver. That didn't feel right to me

I had a grade 2 meningioma and the neurosurgeon referred me to the radiation oncologist, who decided that “I could do more harm than good” and 8 years later the MRI’s are still clean. But from something else that he said, I think the radiation oncologist might have decided differently if they had had the proton therapy equipment. (The center was waiting for the newest equipment to be installed. )

methel: Information like yours, (specifically the quote from the radiation oncologist) helps me to relax about being on the watch-and-wait protocol for the 2 two remaining meningiomas I have. I'm just being realistic, but if mine were not to grow for 8-10 years (and I'm already at year 2 with no changes) that could very well be the term of my normal lifetime anyway, so why put myself through a radiation regimen with possible unwanted and/or harmful side effects by being too proactive. Each meningioma case is so unique. Decisions about it taking up space in our head is based on so many factors like one's age, location, and if the meningioma is causing side effects. There is definitely not a one-size-fits-all strategy.

After your craniotomy, did the numb area throb and feel painful?

i think it all depends on the size and rate of growth!