Clinical Information or Fishbowl?

Posted by stevieb @stevieb, Apr 22, 2024

I very much appreciate the Mayo Clinic providing a forum for persons with PMR. And I do understand why direct medical advice cannot be provided by Mayo doctors. But I have found researching with AI search engines, clinical abstracts with definitive data, concerning everything from coordinating Circadian cycles to syncronize with proper Cortisol... to ... cortisol stimulating receptors in the back of the eye!
But as legitimate as these write ups are, I'm not qualified to vet these pieces of information.

Does the Mayo Clinic monitor this forum, and why can they not at least provide everyone in the forum the links to these clinical findings, studies, professional discussion?
Or does the Mayo Clinic monitor these forums for developing its own Patient Data, and we the forum participants, just a big fish bowl!

(I actually would support being in a "big fish bowl" for the Mayo Clinic. Their work is important and has a profound affect on the common community good)

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@stevieb

Thank you for that perspective!
Do attribute anything to the bone density success. I've had two normal bone density tests, which my doctors say is because I am still doing weight resistance activities.
When you came off the Prednisone, was there a certain level of dosage that seemed to be a "sticking point"? What was your experience with that
In terms of how the Prednisone makes me feel energetically , and the pain
relief I would stay on it! It's the potential complications, that provide me reasons to struggle to get lower dosages and eventually none.

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I play tennis nearly everyday. For nearly 80 I am very active.

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