Starting pre-tests for CAR-T infusion for multiple myeloma

Posted by 4health4bonnie @4health4bonnie, Mar 14 4:16pm

I am just starting my pretests for my car t infusion on March 26. at OHSU. It is hard to not know what my reaction will be. I am staying positive, and I have good support.

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

4health4bonnie | @4health4bonnie | Mar 14 4:17pm

Any suggestions woyld be appreciated

4health4bonnie | @4health4bonnie | Mar 19 6:15pm

Im doing all the pretests now. I will have three days of chemo starting Friday. After two days of rest my modified cells will be infused back. Ill let you know what I experience.
Bonnie

Lori, Volunteer Mentor | @loribmt | Mar 20 8:42am

In reply to @4health4bonnie "Im doing all the pretests now. I will have three days of chemo starting Friday. After..." + (show)

Wishing you well on this journey, @4health4bonnie! I know all the pre-testing can be pretty exhausting with a hefty schedule. But you’ll have nothing but rest coming up for the next few weeks. ☺️

As for reactions to the chemo…you may have a few days where you’re not feeling your best. Fatigue and sometimes nausea are your companions for a little while. Your team will equip you with meds for the nausea. The fatigue just takes time, patience and frequent naps.

How long are you expected to be in the hospital?

4health4bonnie | @4health4bonnie | Mar 21 4:50pm

I will definitely be in the hospital from the 6th day to day 10. Otherwise, it depends on my reactions.
I appreciate you taking the time to respond to me.😊

Colleen Young, Connect Director | @colleenyoung | Mar 23 4:46pm

@4health4bonnie, I'm thinking of you as you prepare to start the pre-test this week for CAR-T therapy for multiple myeloma. I'm tagging @merrle @ntsimpson as I'm confident that they will want to virtually journey alongside you.

Bonnie, I'm sure you're dealing with a bunch of emotions from excited to anxious and everything in between. How are you doing?

4health4bonnie | @4health4bonnie | Mar 23 11:06pm

In reply to @colleenyoung "@4health4bonnie, I'm thinking of you as you prepare to start the pre-test this week for CAR-T..." + (show)

I finished my chemo today, and I did not feel that sick - only tired. The next two days I rest, and Wednesday is day 1 when they infuse the cells back. Im just taking one day at a time. Thanks for your support.

lorriemox | @lorriemox | Mar 26 4:27pm

Praying for you Bonnie!

4health4bonnie | @4health4bonnie | Mar 26 7:19pm

Cells are back in now! So far so good!😊

4health4bonnie | @4health4bonnie | Mar 30 2:35pm

In reply to @4health4bonnie "Cells are back in now! So far so good!😊" + (show)

Going into the hospital tomorrow. Im in day 5. Symptoms on the average start day 7. Im in a high risk bracket for symptoms because of percentage myeloma cells. Hoping for mild symptoms! Im in the wait and see stage.

Lori, Volunteer Mentor | @loribmt | Apr 2 2:21pm

In reply to @4health4bonnie "Going into the hospital tomorrow. Im in day 5. Symptoms on the average start day 7...." + (show)

Thinking of you, @4health4bonnie! Hoping all is going well with the infusion today…wishing minimal side effects. Sending an air-hug! ☺️

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