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Invisible illness how do you cope?
Hi im new to this forum, i wanted to maybe connect with people who are struggling the same as myself. I have multiple chronic illnesses, an autoimmune disease which
my doctors can really pin point to. I have so many symptoms that they consume my life, i want to ask anyone out there how do you cope any suggestions welcomed !
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I cope with doing a lot of mental work. Accepting my new role in life, being grateful for what I have and can do, not putting the societal pressure on myself anymore and working with what I have. That doesn't mean I never have a melt down! It's a process and takes time. Now that I'm older I give myself more grace, time and am more in tune with my body and it's limits.
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2 ReactionsI so agree.
Oddly enough, my invisible illness (ITP) has symptoms, but I don't seem to suffer from any of them. I bruise easily, but not that easily (at least at this point). I had a doctor tell me that I look nothing like the typical ITP patient. I also suffer from chronic pain due to a bad knee and the inability to take any pain relievers for it (because of the ITP). I am working toward trying to get knee replacement surgery, after hyaluronic acid injections didn't work. Of course, surgery is at the whim of where my platelet count is at the time. I already suffered from chronic depression; so this has made that worse. I see a therapist monthly, and do a lot of work with CBT and DBT work books - which really help me keep things in perspective. I hope you are able to find ways to accept and be kind and patient with your body.