Has anyone been diagnosed with GFAP (glial fibrillary acidic protein)?

Posted by gardrums123 @gardrums123, May 26, 2023

My husband has been diagnosed with a rare autoimmune disease called autoimmune glial fibrillary acidic protein astrocytopathy.
Has anyone been diagnosed with this. Looking to know what we may have ahead of us.

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Hello, Autoimmune Community:

I found a link to a French study of the GFAP condition. It also has some additional links and brain pictures to show people who don't believe it is an actual condition.

20 to 50 percent of patients relapse. It is difficult for people to understand the condition since I look better, weighing 25 lbs less. A good, inexpensive movie to watch on PRIME is Brain on Fire. A young female columnist in New York starts experiencing psychotic episodes. She is initially diagnosed to have bipolar schzophrenia until one of the consulting physician's former professor neurologist takes a closer look! Not the same condition as the GFAP; however, it gives you a better insight into what a brain autoimmune disease can do and the kinds of struggles that can ensue trying to get a correct diagnosis!

I'm sorry. I tried to post a link but was denied! Really? Just look up " GFAP French Study " on Dr. Google! Take Care!

REPLY
@luceman

Hello, Autoimmune Community:

I found a link to a French study of the GFAP condition. It also has some additional links and brain pictures to show people who don't believe it is an actual condition.

20 to 50 percent of patients relapse. It is difficult for people to understand the condition since I look better, weighing 25 lbs less. A good, inexpensive movie to watch on PRIME is Brain on Fire. A young female columnist in New York starts experiencing psychotic episodes. She is initially diagnosed to have bipolar schzophrenia until one of the consulting physician's former professor neurologist takes a closer look! Not the same condition as the GFAP; however, it gives you a better insight into what a brain autoimmune disease can do and the kinds of struggles that can ensue trying to get a correct diagnosis!

I'm sorry. I tried to post a link but was denied! Really? Just look up " GFAP French Study " on Dr. Google! Take Care!

Jump to this post

Hello @luceman, I noticed that you wished to post a URL to an article with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

"Glial Fibrillary Acidic Protein Autoimmunity: A French Cohort Study"
- https://pubmed.ncbi.nlm.nih.gov/34799461/

REPLY
@JustinMcClanahan

Hello @luceman, I noticed that you wished to post a URL to an article with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

"Glial Fibrillary Acidic Protein Autoimmunity: A French Cohort Study"
- https://pubmed.ncbi.nlm.nih.gov/34799461/

Jump to this post

Thanks Justin!

Could you please add to my text that you can watch Brain On Fire for Free
by typing it in a web search engine? Last, would you please make sure that
I don't have any duplicate posts! I sure appreciate all your help. The
info on this condition is so rare. 2 years ago, we basically knew nothing
and did not know where to get it. If I hadn't got diagnosed, I possibly
would no longer be living. If this gets posted some how. Please delete!
Thanks

REPLY
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