Does anyone have a falx meningioma in-between the brain hemispheres?

Posted by gigikocmankokemoor1 @gigikocmankokemoor1, Oct 26, 2024

I was diagnosed with Falx Meningioma cerebral brain

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ljm1 | @ljm1 | Apr 2 9:49am

In reply to @gigikocmankokemoor1 "Anyone else have a falx meningioma brain tumor, and if so what experiences have you had" + (show)

I found out about my anterior falx meningioma in Feb. I was experiencing headaches every morning when I wake up. MRI showed the 11x6mm tumor. My neurologist doesn't think the headaches are a result of the tumor. I have a follow up MRI. I have scheduled an appointment for a second opinion. Praying for peace of mind and healing.

gigikocmankokemoor1 | @gigikocmankokemoor1 | Apr 2 11:47pm

In reply to @ljm1 "I found out about my anterior falx meningioma in Feb. I was experiencing headaches every morning..." + (show)

❤️

Colleen Young, Connect Director | @colleenyoung | Apr 9 6:13pm

In reply to @ljm1 "I found out about my anterior falx meningioma in Feb. I was experiencing headaches every morning..." + (show)

@ljm1, do you have the results of the MRI or the second opinion? How are you doing?

ljm1 | @ljm1 | Apr 9 7:47pm

In reply to @colleenyoung "@ljm1, do you have the results of the MRI or the second opinion? How are you..." + (show)

I have secured an appointment for a second opinion to give me clarity and reassurance at the Mayo Clinic in Rochester,MN next week I pray this appointment brings me confidence in my next steps.

Colleen Young, Connect Director | @colleenyoung | Apr 16 9:42pm

In reply to @ljm1 "I have secured an appointment for a second opinion to give me clarity and reassurance at..." + (show)

I look forward to your next update after your appointment, @ljm1

lakeout | @lakeout | Apr 17 2:15pm

In reply to @ljm1 "I found out about my anterior falx meningioma in Feb. I was experiencing headaches every morning..." + (show)

Me! 9x12 mm. Anterior falx…. Under a web of veins of course. Said if did surgery would have e to flap open my skull from back & risk of seizure stroke etc didn’t recommend but will be glad to operate if I want! Calcified per mri — watch & wait for 6-months ‘might have been there for years’. Didn’t sound positive about RSS (radio-surgery like gamma knife et al) …. Didn’t really seem to care 1-way or the other or have looked at my file ahead of time. Lots of vague answers to my many ?s.

I requested rss 2nd opinion at Wake Forest (vsCharlotte NS practice I saw) to learn about surgery alternatives…. If I do need surgery won’t go to this guy. Possibly Duke or Unc closest to me. Btw I’m 68 & otherwise in good health, active, mild headache bands come & go. Not as sharp mentally as I was, that’s probably just age?!

As long as it’s calcified & not growing/no symptoms I’m cool, just want to know my future options.

Please detail what you’ve learned …. Our Ms are in same location & similar size

Hugs
Linda
Only met 1-

Colleen Young, Connect Director | @colleenyoung | Apr 27 9:41am

In reply to @lakeout "Me! 9x12 mm. Anterior falx…. Under a web of veins of course. Said if did surgery..." + (show)

Welcome, @lakeout. I'm glad you and @ljm1 can connect here:

@lakeout, did you get a second opinion?

@ljm1, what did you learn at your recent appointment?

ljm1 | @ljm1 | Apr 27 2:56pm

In reply to @colleenyoung "Welcome, @lakeout. I'm glad you and @ljm1 can connect here: @lakeout, did you get a second..." + (show)

My appointment at Mayo Clinic, Rochester went well. So happy I went! I was able to speak with Neuro-Oncology as well as Neurosurgeon. Both were a wealth of information which gave me so much more clarity. As of now we will stay under surveillance. Dr. Pollock asked that have another MRI in June. As discussed if any growth we will possibly move forward with gamma knife.

lakeout | @lakeout | Sep 12 8:44pm

In reply to @ljm1 "My appointment at Mayo Clinic, Rochester went well. So happy I went! I was able to..." + (show)

I’m still waiting for a 2nd opinion and my first 6-month w&w mri …. I am happy (& jealous) that you had such a positive experience learning more about both your current situation & future options. Check in every now & then to say all is okay — or if you learn more. You’re only the 2nd person I’ve found with an M in the same location

ljm1 | @ljm1 | Sep 14 12:49pm

I learned that my “hidden treasure” (It gives me peace in giving it a name because it has truly brought me closer to God) is calcified and they, my neurologist and neurosurgeon, doesn’t expect a change at this time. I found myself with the constant worries of what-ifs. Since my recent results I have come to terms that every day is a blessing, I’ve calmed down A LOT and living more without the worries. My advice is to stay positive and do the things you love the most because the stress of what-ifs will make it harder to cope. Good luck with your journey and I’ll keep you updated on mine!