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Is Essential Thrombocythemia a blood disease or cancer?
Blood Cancers & Disorders | Last Active: Aug 5 11:11am | Replies (182)Comment receiving replies
Thanks so much @nohrt4me! I'm adding these questions to my list. If you think of anything else, please let me know.
I'm also inviting anyone else reading this to share:
-questions that you may like answers to,
-questions that you may have asked in the past and did not get a satisfactory answer to or none,
-or,questions that you thought to ask and have asked and did get an answer to.
Replies to "Thanks so much @nohrt4me! I'm adding these questions to my list. If you think of anything..."
@gigi05 thanks for posting these options.
I think it would help if we could share:
How long has one had the diagnosis?
What medication are they currently on?
How long have they been on a certain medication?
What side effects are they feeling, if any, from the drugs?
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I do have a question. I was just diagnosed with JAK2 ET. Platelets at 790 and will be starting HU and Baby Aspirin after my bone marrow test. I am considered high risk due to my age and symptoms. I am also going to need BCG or some type of localized chemo for non-muscular invasive bladder cancer soon. Has anyone had any experience with this? Along with my stage 3 kidney failure I am starting to feel just tad overwhelmed :/ Thanks for the tips already provided and I know this is a "left field" ask 🙂