A good question is: What symptoms might I have that I should call the office to report. I have had ET for 17 years, and I am still trying to get a straight answer for this!

Also ask if you need to coordinate ET care with hemo if you needed surgery or treatment for something like a heart condition or diabetes. Never know what's around the corner.

If you have really great insurance and are HU averse (saw yr post on another thread), ask about Besremi (interferon injections). They are not without side effects, but some here are doing very well.