Microscopic colitis

Hi DebE, I noticed a drastic improvement after about 6 weeks in my symptoms after going GF. From what I gather on the Potty People website (http://www.perskyfarms.com/phpBB2/index.php) everyone has a different time and path to remission. I suspect the time it takes depends on the amount of inflamation and irritation in the bowels one starts out with. Just because you don't have full blown celiac disease doesn't mean you don't have a gluten sensitivity. And there may be other foods that you are senstive to as well. Hope you get some relief soon.

Have you tried a gluten-free diet?

I was diagnosed with Celiac 2 years ago, and have been completely free of GLUTEN, however I was just now diagnosed with Microscopic Colitis, which sometimes goes hand in hand with Celiac. So no gluten for 2 years, so some of this does not ring true. I am now going to an acupuncturist next week, that has helped me with other problems, to my amazement, I will keep you posted. I also was on prednisone 3 times after being hospitalized in Feb. and I have read articles it could contribute to MC.

I have been on a very low dose of steroid for almost a month. This steroid is so mild. You do not have to worry about gaining weight on it. However, it is a steroid. I find it it seems to help, however, certain things will trigger the colitis for me. Caffeine, alcohol, certain supplements.

Please let us know how you make out with the acupuncturist! I am very interested in trying this.

I was diagnosed in 2018 with microscopic colitis. Suffered with all of the typical symptoms until i heard the SSRI, fluoxetine (prozac) I was taking, was causing the problems with MC. Stopping the antidepressant worked! Now however, every antidepressant I’ve tried since brings back the colitis. Have any of you found treatment for depression that does not wake up the beast? Any increase in serotonin makes the colitis bad.

I was given Budesonide years ago for chronic microscopic colitis. However, even though it was meant for strictly the colon, mine was absorbed into my system, and began to affect my adrenal glands. So I've had to stop, and now there is nothing else to take. I am currently taking it, low dose 3 mg every day until I can begin Remicade Infusion, which I am very wary of.
Anyone else taking this? Very eager to hear from someone who is receiving it.

I will be starting Remicade infusion soon, and have no idea how it help, or how I'll react. Dr. says it's the next line of treatment, after Budesonide.
Comments?

Hi, @free73kja - welcome to Mayo Clinic Connect. Although this discussion is about Remicade for Crohn's and not colitis, I thought it might be useful and provide some members to interact with on this medication:

- Crohn's disease: Question about Remicade (Infliximab) https://connect.mayoclinic.org/discussion/crohns-disease-2ed085/

I was initially diagnosed about 8 years ago. Unfortunately, all of the standard treatments did not work for me. After switching GI physicians (my old GI kept telling me this was IBS, not IBD), I later found out I was born with an abnormal pancreas as well. So, a majority of the pain I was experiencing was due to PEI (or EPI) Pancreatic Enzyme Insufficiency. The PEI replacement therapy has done wonders for the pain. Unfortunately, the MC symptoms still continue. (Oh, I also have Celiac and have been GF for over 20 years as well)