Many thanks to you all for your commentaries. At this point molecular tests are being done to see about eligibility for targeted treatment. Awaiting results to see if ALK is positive or not. Definitely aware of the power of positive outlook and optimism towards possible treatment! Quality of life very important factor when looking at treatments and their adverse effects, as in the example given by the moderator.
Hi, I WAS DIGNOSE WITH TWO KIND OF LUNG CANCER LAST jANUARY.i HAVE PLAIN LUNG CANER IN MY RIGHT LUNG. i HAVE MESOTHLIOMA IN MY LEFT LUNG. i AM 83 YEARS OLD, sO FAR THERE HA BEEN NO TREATMENT. mESOTHELIOMA ISNT VERY TREATABLE. jUST VERY EMOTIONAL....SHORTSHOT80.
Hi Alicia-
Don't give up-please!
My wife has stage IV NSCLC, Mayo removed 2 lobes of her right lung 18 months ago. She subsequently had chemo, and last July was told her cancer had metastasized. Her oncologist recommended Opdivo, which he has now determined (after 9 infusions) that she is not responding to...molecular testing revealed that hers is an ERbB2, found in only 2% of lung cancer patients. She qualifies for 2 clinical trials, NEVER GIVE UP!
Assuming she is accepted for the My Pathway trial, she will try it...if she can't tolerate the drugs she will try the My Match trial. NEVER GIVE UP!
Best of luck!
I want to make sure I understand your question correctly, Alicia. Are you considering stopping active treatment and opting for palliative care? Or have you requested a treatment that your care team advised against?
Hi: you are race to share your diagnosis. Many people have difficulty reaching out. I know of a man who in fact had surgery at Mayo RST for mesothelioma and it improv d his quality of life fir 5 years. Everyone was pleasantly surprised and it also gave everyone to accept the miracles of surgery and determination of someone in their 80's!
It sets examples in many ways.
Mayo Clinic gives everyone hope and time to live many lessons. Everyday is a blessing and teaches us to be grateful... at least in my case as a 8 year 11 month lung cancer survivor;-)
Bless you!
Linda
We found out that my husband is not ALK positive so two days ago he began chemotherapy. No vomiting, but stomach discomfort and acid reflux as well as not beng able to eat. Since yesterday he has only eaten soup, a vitamin-high caloric drink, orange juice, some oatmeal and a yoghurt shake. Peppermint candy bits seem to calm the reflux and now he has been prescribed omeprazol which he begins tomorrow. Any suggestions for foods? Smells really get to him even though they are not strong ones. Thanks to anyone with ideas !
Hang in there...what chemicals are they giving him?
Have they done a genomics study?
My wife was determined to have Her2 mutation, only after going thru chemo...
Her2 is typically found in breast cancer, but hers was in the lungs! She had NSCLC.
My husband has had two chemo sessions of Cisplatin and pemetrexed with zometa). He hasn't vomited but has aversion to certain foods, not always the same reaction to the same foods. His latest scan shows a new nodule in the lung and progressive bone metástasis. He will begin radiotherapy next week. Sometimes I feel that the treatments are going to kill him. He is a very active person by nature and now has no energy at all.
Dear Alicia:
You are so right about the improvements in treatments. These would not be possible without the brilliant minds of research teams and doctors and our brave patients. 9 years ago when I was diagnosed with non small cell lung cancer and a 3cm amor in my upper left lung lobe, it was difficult to find the proper diagnosis and proper treatment. Without Mayo Clinic I would not be here today breathing, running and climbing higher to help others become aware of the amazing treatments that give us the best quality of life. So, Never Ever Give Up! is my motto. Keeping our attitude on the up side is equally important. So, love, laugh and sing and take time out to quiet your body mind and spirit 2x's a day. I am grateful for Mayo Connect it will help us all as we come together is this wonderful community. Thank you. Linda Wortman
I have stage IV lung cancer, non-small cell. I have been so fortunate because I qualified for first line treatment with Tarceva (Erlotinib). It's pill that I take once a day. At first, the side effects were pretty severe, but as time goes on, I am tolerating the drug very well, feeling great 90% of the time. And thanks to Mayo and their fantastic staff, I am feeling peace and calm in spite of having this damn disease.
Dear Alicia:
You are so right about the improvements in treatments. These would not be possible without the brilliant minds of research teams and doctors and our brave patients. 9 years ago when I was diagnosed with non small cell lung cancer and a 3cm amor in my upper left lung lobe, it was difficult to find the proper diagnosis and proper treatment. Without Mayo Clinic I would not be here today breathing, running and climbing higher to help others become aware of the amazing treatments that give us the best quality of life. So, Never Ever Give Up! is my motto. Keeping our attitude on the up side is equally important. So, love, laugh and sing and take time out to quiet your body mind and spirit 2x's a day. I am grateful for Mayo Connect it will help us all as we come together is this wonderful community. Thank you. Linda Wortman
Welcome back Gerry. @llwortman is also a Mayo Clinic patient and lives with non-small cell lung cancer.
Linda, did you ever take Tarceva (Erlotinib)?
Gerry, have you heard about or taken part the walk, run, climb races that Linda organizes for lung cancer awareness?
Dear Alicia:
You are so right about the improvements in treatments. These would not be possible without the brilliant minds of research teams and doctors and our brave patients. 9 years ago when I was diagnosed with non small cell lung cancer and a 3cm amor in my upper left lung lobe, it was difficult to find the proper diagnosis and proper treatment. Without Mayo Clinic I would not be here today breathing, running and climbing higher to help others become aware of the amazing treatments that give us the best quality of life. So, Never Ever Give Up! is my motto. Keeping our attitude on the up side is equally important. So, love, laugh and sing and take time out to quiet your body mind and spirit 2x's a day. I am grateful for Mayo Connect it will help us all as we come together is this wonderful community. Thank you. Linda Wortman
Dear Alicia:
You are so right about the improvements in treatments. These would not be possible without the brilliant minds of research teams and doctors and our brave patients. 9 years ago when I was diagnosed with non small cell lung cancer and a 3cm amor in my upper left lung lobe, it was difficult to find the proper diagnosis and proper treatment. Without Mayo Clinic I would not be here today breathing, running and climbing higher to help others become aware of the amazing treatments that give us the best quality of life. So, Never Ever Give Up! is my motto. Keeping our attitude on the up side is equally important. So, love, laugh and sing and take time out to quiet your body mind and spirit 2x's a day. I am grateful for Mayo Connect it will help us all as we come together is this wonderful community. Thank you. Linda Wortman
Hi Gerry & Colleen:
I am a 9 year nonsmall cell lung cancer survivor. My treatment was VATs resection of 3cm tumor and most of my left lung. I never smoked and when I ran to the library I found information about never smokers and lung cancer was very limited.
I soon learned the stigma we all may suffer with the diagnosis of this disease also affects the desperately needed lung cancer research funding and survivor support outside a hospital setting.
I am Very happy see that Lung cancer research and treatment has come such a long way. However more research is needed! After my life insurance company cancelled my policy, and told me I should be dead (based in survival statics) I completed running a 5k race in all 50 states !
Then my husband and I co founded a non profit foundation &
RunningLungs walk & run races just 2 years ago to create awareness & funding for Mayo lung cancer, lungbheslth & pulmonary research!
It is amazing how many people show gratefulness for our organization & outreach. Our events may be small but the community support message is welcome in RST, MPLS, PHX, BzN & soon JAX !
My Mayo Teams offered me much support and hope & the resesrch studies were a huge part of my
Survival along with my loving husband and family.
Most importantly was my attitude and will to Survive against the 85% odds of dying!
It took
Three years but I got back on my Xcountry skies, bicycle and then decided to start running races. This past August 2016, with the Mayo Clinic Humsn Physiology Research Team, we summitef Africas Mt Kilimanjaro.
My life's purpose is to give others hope so together we can fight back against lung disease, live the best quality of life possible, and help researchers blow lung cancer away!
Keep up
The great attitude! And check out utube for my TEDx Talk BEATING THE ODDS"
You deserve s hug! Let's stay connected...Glad you signed up!
Linda
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Hi, I WAS DIGNOSE WITH TWO KIND OF LUNG CANCER LAST jANUARY.i HAVE PLAIN LUNG CANER IN MY RIGHT LUNG. i HAVE MESOTHLIOMA IN MY LEFT LUNG. i AM 83 YEARS OLD, sO FAR THERE HA BEEN NO TREATMENT. mESOTHELIOMA ISNT VERY TREATABLE. jUST VERY EMOTIONAL....SHORTSHOT80.
Hi Alicia-
Don't give up-please!
My wife has stage IV NSCLC, Mayo removed 2 lobes of her right lung 18 months ago. She subsequently had chemo, and last July was told her cancer had metastasized. Her oncologist recommended Opdivo, which he has now determined (after 9 infusions) that she is not responding to...molecular testing revealed that hers is an ERbB2, found in only 2% of lung cancer patients. She qualifies for 2 clinical trials, NEVER GIVE UP!
Assuming she is accepted for the My Pathway trial, she will try it...if she can't tolerate the drugs she will try the My Match trial. NEVER GIVE UP!
Best of luck!
Hi: you are race to share your diagnosis. Many people have difficulty reaching out. I know of a man who in fact had surgery at Mayo RST for mesothelioma and it improv d his quality of life fir 5 years. Everyone was pleasantly surprised and it also gave everyone to accept the miracles of surgery and determination of someone in their 80's!
It sets examples in many ways.
Mayo Clinic gives everyone hope and time to live many lessons. Everyday is a blessing and teaches us to be grateful... at least in my case as a 8 year 11 month lung cancer survivor;-)
Bless you!
Linda
We found out that my husband is not ALK positive so two days ago he began chemotherapy. No vomiting, but stomach discomfort and acid reflux as well as not beng able to eat. Since yesterday he has only eaten soup, a vitamin-high caloric drink, orange juice, some oatmeal and a yoghurt shake. Peppermint candy bits seem to calm the reflux and now he has been prescribed omeprazol which he begins tomorrow. Any suggestions for foods? Smells really get to him even though they are not strong ones. Thanks to anyone with ideas !
-
Like -
Helpful -
Hug
1 ReactionHang in there...what chemicals are they giving him?
Have they done a genomics study?
My wife was determined to have Her2 mutation, only after going thru chemo...
Her2 is typically found in breast cancer, but hers was in the lungs! She had NSCLC.
My husband has had two chemo sessions of Cisplatin and pemetrexed with zometa). He hasn't vomited but has aversion to certain foods, not always the same reaction to the same foods. His latest scan shows a new nodule in the lung and progressive bone metástasis. He will begin radiotherapy next week. Sometimes I feel that the treatments are going to kill him. He is a very active person by nature and now has no energy at all.
I have stage IV lung cancer, non-small cell. I have been so fortunate because I qualified for first line treatment with Tarceva (Erlotinib). It's pill that I take once a day. At first, the side effects were pretty severe, but as time goes on, I am tolerating the drug very well, feeling great 90% of the time. And thanks to Mayo and their fantastic staff, I am feeling peace and calm in spite of having this damn disease.
-
Like -
Helpful -
Hug
1 ReactionWelcome back Gerry. @llwortman is also a Mayo Clinic patient and lives with non-small cell lung cancer.
Linda, did you ever take Tarceva (Erlotinib)?
Gerry, have you heard about or taken part the walk, run, climb races that Linda organizes for lung cancer awareness?
No, but I'm trying to line up people for a free 12 week exercise class at the Desert Foothills YMCA
Hi Gerry & Colleen:
I am a 9 year nonsmall cell lung cancer survivor. My treatment was VATs resection of 3cm tumor and most of my left lung. I never smoked and when I ran to the library I found information about never smokers and lung cancer was very limited.
I soon learned the stigma we all may suffer with the diagnosis of this disease also affects the desperately needed lung cancer research funding and survivor support outside a hospital setting.
I am Very happy see that Lung cancer research and treatment has come such a long way. However more research is needed! After my life insurance company cancelled my policy, and told me I should be dead (based in survival statics) I completed running a 5k race in all 50 states !
Then my husband and I co founded a non profit foundation &
RunningLungs walk & run races just 2 years ago to create awareness & funding for Mayo lung cancer, lungbheslth & pulmonary research!
It is amazing how many people show gratefulness for our organization & outreach. Our events may be small but the community support message is welcome in RST, MPLS, PHX, BzN & soon JAX !
My Mayo Teams offered me much support and hope & the resesrch studies were a huge part of my
Survival along with my loving husband and family.
Most importantly was my attitude and will to Survive against the 85% odds of dying!
It took
Three years but I got back on my Xcountry skies, bicycle and then decided to start running races. This past August 2016, with the Mayo Clinic Humsn Physiology Research Team, we summitef Africas Mt Kilimanjaro.
My life's purpose is to give others hope so together we can fight back against lung disease, live the best quality of life possible, and help researchers blow lung cancer away!
Keep up
The great attitude! And check out utube for my TEDx Talk BEATING THE ODDS"
You deserve s hug! Let's stay connected...Glad you signed up!
Linda