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Feeling tired all the time- One month on higher dose of Camzyos

Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 1 5:24pm | Replies (13)
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@katydid333

Hi Brumaster. I have been following your posts for quite a while, but didn't know about the problem staying in the Camzyos program. Just fyi, I have been on Camzyos since October of last year and have never heard anything about not being able to stay on the program. My gradients have steadily improved from 59 mmHg down to the 11 - 12 mmHg area. It seems to make sense to me that if you improve your gradient, they would want you to continue...but what do I know about these pharma companies and all the different programs they have. Hope you get to stay on it. Keep posting on your progress.
Katy

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Replies to "Hi Brumaster. I have been following your posts for quite a while, but didn't know about..."
brumasterj | @brumasterj | Apr 1 5:24pm

Hey Katy
Thanks for the response
Yes, I had my ultrasound done last month and the technician said in order to meet the requirements for the REMS program need to be over 30 so she had me doing squats and I didn’t take much about 10 or 15 squats and recheck me i was 38
I did not talk to the doctor about it That information came from the gal that did my ultrasound. I will come off Camzyos in May for my septal myectomy
Now it could have been to stay on 5mg and not change doseage!
So i could be leading people astray with false information!
i should have talked to the doctor about that comment
Again it could be based on each different case?
Glad its working for you and so many others:)

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