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Otologist/Neurotologist Recommendations

Ear, Nose & Throat (ENT) | Last Active: 19 hours ago | Replies (12)

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@rkoepke

Since I was recommended by the mentor, I will add to this, but unfortunately I’m doubtful about my usefulness. As said in other posts I’ve had, and have some, but not all of the symptoms you have. I too have worsened since surgery with tinnitus, hearing loss, fullness in my head, pain and vertigo. Have been (unsuccessfully) on a quest to “cure” all of these. The one thing that has helped me is my mindset, and “acceptance” of my disability. You ask how it has helped, well, I no longer get up fast, I very rarely sit in a room without some sort of noise (my favorite noise is smooth jazz), in addition to the nerve blockers I’m on, I use CBD ointment for pain, and gummies for sleep. I go to a physical therapist for help in getting my motion back, which has slightly given me some relief of pain. As for my attitude, I use to hold modern medicine and doctors in the highest esteem, no longer. I realize they are human and are “practicing” medicine. There’s a reason they use that term, because there are things they don’t know. Don’t tell them this, but they are not GOD’s. As much as we all would like to get cured, sometimes they just don’t know the answer. Have I given up? NO!!! But, I have set my mind to dealing with what I have and continue to hope!! Like I said in the beginning, I doubt this will help, but it’s made me a lot more at peace and my wife can once again love and support me. Good luck, I will pray for you and if you find that doctor that “fixes” you let us all know what he did. Cause we all need to hear when someone else wins, it gives us hope!!!!

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Replies to "Since I was recommended by the mentor, I will add to this, but unfortunately I’m doubtful..."

Accepting that the specialists are not able to "fix" anything to do with tinnitus, and learning to live with it, is the best option until the puzzle is resolved. It is a disability, usually unrecognized by anyone because we sufferers are the only ones who " hear" it. ENT docs are unable to help, and I believe it is nerve damage but as a neurologist told me, you can't really see that on any test or fix it with any drug. So you cope with living with the dizziness, noise, and trying to hear over it. I find that having a project or two going on all the time and a houseful of pets to distract me from myself help more than anything. Sort of: where there is will, there is a way.

Yes, I have found mindset is key. The more you dwell on our symptoms, the worse your symptoms seem. I finally had to just tell God one day, I don’t understand why you’re not healing me but I trust you. I have to keep telling myself that. I just wish it would stabilize somewhere, so I can move on. That’s what’s frustrating for me. Luckily, I do not have any pain. Occasionally I’ll get a sharp shooting pain, but thank goodness it doesn’t usually last but a few seconds. Thank you! I will pray for you as well! I will let you know when I find that special Dr.