← Return to Entresto. Would appreciate any discussion, pros, cons.

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@joyh
I have been on Entresto since it came out. I had declining EF numbers and my heart failure (HF) doctor at Mayo put me on Entresto and Carvididol. I am on the highest number for Entresto.

Side affects: I have read many saying the side affects were too hard and some came off. I was told I would have side affects of fatigue, etc. I did! I called my HF doctor and he asked me to give my body time to adjust to the medications and most likely they would lesson and eventually go away. He was right. Took several weeks but side affects got lessor and lessor.

My EF is now stable and has been same for about 10 years now. I am not sure if it was Entresto but my EF became stable on it with Carvididol. It really had a quality of life change when my EF stopped going down. Entresto is one of many new drugs specifically made for HF.

Just a note: When I was first prescribed Entresto my insurance would not cover. Norvast (maker or Entresto) offered to cover my prescription free and they did for several years. My Mayo HF worked to get the Entresto to be classified as a HF drug not just BP. My insurance company finally agreed and approved it. But at a high co-payment cost. I went from paying $0.00 to $125.00 every 3 months through my mail service as retail was even more expensive. Just mentioning as if you have trouble with insurance you can always asked for help from Norvastis.

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Replies to "@joyh I have been on Entresto since it came out. I had declining EF numbers and..."

I called the Entresto phone number for financial help. It was covered under my insurance. However, it is Not covered now due to a generic being available. When I called, they said they could help if I had Medicare/Medicaid. They transferred me to the insurance department. There I was told that unless insurance covered it, they could not provide a discount coupon.
I am appealing to my insurance company to cover the real Entresto. I have developed significant neurological side effects from the generic. My insurance put in a transition of care and allowed me 1 month of real Entresto (with using the discount coupon), to try to see if the neuro side effects are from the generic form or from something else, and while I am appealing the final decision if real Entresto will be covered again. The neuro symptoms are significant. Blood work is all good. Even went to a neurologist. Without insurance, Entresto can cost $630 for a 30 day supply.