← Return to how to get a more difinitive diagnois for idiopathic neuropathy

Discussion
Comment receiving replies
@mrmacabre

I've been dealing with idiopathic poly neuropathy for over a decade now, but only got my official diagnosis about 2 years ago. It took seeing 3 neurologists and 2 neurosurgeons, several EMG tests, blood tests, and skin punch biopsies to reach this conclusion.
No definitive cause can be determined, great. Will it get any better? Nope. Is there any real treatment available? Nope.
I'm already taking 3600mg of gabapentin a day to dull the pain, what happens when that's not enough any more? Who knows?
Am I angry and depressed? Yup.

Jump to this post


Replies to "I've been dealing with idiopathic poly neuropathy for over a decade now, but only got my..."

I also have idiopathic PN. I was taking 4 a day gabapent 600 mg each. Could not tolerate it made me loose balance and fall a lot. Weaned off of it.
Now using alpha ALA alpha lipoic acid, NAC, PEA/turmeric , B12 and fever few. Considering trying Hemp gummies and/or cbd with cbg oil