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Thank you for reaching out to me, Sam. I’m so sorry to hear that you’re dealing with such a rare condition and an AVM, but I’m glad to hear from you, and I really appreciate your kind words.

As for my AVM, I’ve decided to seek a second opinion. My neurosurgeon is a wonderful doctor—he actually encouraged me to do so and even gave me names of other neurosurgeons.

In your case, I assume your doctor has told you they can operate and remove it with confidence, right? If so, I would go for it if I were you. Don’t be scared—your beautiful children would be so happy to see you healthier!

I’m praying for you, too!!
Ruby

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Replies to "Thank you for reaching out to me, Sam. I’m so sorry to hear that you’re dealing..."

@rubyruru I'm new to this forum. I , too have been diagnosed with congenital AVM. I'm 70 y.o. and have been asymptomatic. My first surgeon recommended only radiation treatment as surgery is not an option due to location. A friend informed me Stanford has an AVM clinic and I got a second opinion there. Surprisingly, they recommend surgery. He sounded confident that he can take it all away. Nevertheless, I am quite apprehensive. I would love to hear others experience who have done the surgery. I need to decide.