1. < Chronic Pain

16 Years With CRPS

Posted by viperwolf @viperwolf, Mar 16 2:38am

My Spinal Cord Stimulator (upper and lower unit) started acting up and not responding. Now its dead. I doubled up on Gabapentin (max dosage) but if you have this you understand. Nothing fully helps. My rashes are getting worse by the day without the help of the stimulator.
This is a list of procedures Ive done
Painkillers
Anticonvulsants
Antidepressants
Epidural block
Corticosteroids
Intravenous Ketamine
Sympathetic Nerve Block
Physical Therapy
Aqua Therapy
Biofeedback
Botulinum toxin injections
Heat Therapy
Transcutaneous Electrical Nerve Stimulation
Topical Analgesics
Intrathecal Drug Pump
This (SCS) and gabapentin works the best for long term.
Spinal Cord Stimulator (upper and lower unit)

Interested in more discussions like this? Go to the Chronic Pain Support Group.

curvedspine | @curvedspine | Mar 24 11:48am
In reply to @viperwolf "Up date with a medication list that I have tried. Medications list AMITRIPTYLINE CIPROFLOXACIN CLONIDINE DIAZEPAM..." + (show)
@viperwolf

Up date with a medication list that I have tried.

Medications list

AMITRIPTYLINE
CIPROFLOXACIN
CLONIDINE
DIAZEPAM
Dilaudid
DIVALPROEX
DOCUSATE
GABAPENTIN
IBUPROFEN
MAGNESIUM OXIDE
METHADONE
METOCLOPRAMIDE
MORPHINE
OLANZAPINE
OMEPRAZOLE
OXYCODONE 5/ACETAMINOPHEN 3
PRAZOSIN
PROMETHAZINE
SERTRALINE
VENLAFAXINE
VERAPAMIL
ZOLPIDEM

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Tramadol? I keep my pain under control with it. I have no side effects. I cannot take some on your list -

REPLY
tad1304 | @tad1304 | Mar 24 12:31pm

Two things: 1) Have any of you tapped into this organization as a resource https://rsds.org/join/ (while using an older acronym - it supports the CRPS community and 2) encourage taking a look at the pubmed.gov abstracts on PEMF and CRPS and BEMER and CRPS (https://pubmed.ncbi.nlm.nih.gov/29985719/). Mixed conclusions in the studies which is not unusual since not all PEMF is equal.

REPLY
suecutuli | @suecutuli | Mar 25 1:30pm

Tears fall as I read. I was diagnosed 18 years ago with CRPS. I have rejected that diagnosis and tried everything- EVERYTHING- to be well . But I am not.

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viperwolf | @viperwolf | 3 days ago

Just to be clear, Im not on all those medications at one time. Its just a list of almost everything that has been tried. I refuse anything narcotic type for the last 12 years and only take Gabapentin, Ibuprofen (when needed), Docusate or similar, and antacids.

REPLY
viperwolf | @viperwolf | 1 day ago

Is 3600 really the limit on Gabapentin?

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