How do you really ever fully process a cancer diagnosis?

Posted by Denise @denisestlouie, Sep 15, 2024

Today marks the end of the 10th week since I learned that I have cancer. Since then things moved very fast. I had a provider that understood the aggressive nature of my cancer and she managed to refer me to a oncology surgeon within a week and a half and because of someone else's misfortune of contracting covid before surgery I was able to have a total hysterectomy within 2 weeks following my diagnosis. Immediately after surgery my oncologist felt that we had caught this in an early stage and was very optimistic. But a week later the pathology came back stage 3A uterine clear cell carcinoma HER2+. Later that was refined to mixed clear cell serous carcinomas.

None of those words meant anything to me 10 weeks ago. Today they just run through my brain almost every single minute of every single day. I've already started a regiment of chemotherapy and have completed two cycles of six. My doctor tells me I have a great prognosis. He believes that with the chemotherapy, my lifestyle changes and maintenance therapy of herceptin. I have the potential to beat this cancer. However, I have scoured every paper I can find in PubMed and I see very little hope in those papers. I want to live my life believing that I can conquer this diagnosis and live a long life, But I find very little evidence in what I read that that is true or will be true.

10 weeks really isn't a very long time to wrap your head around a life altering diagnosis. How will I ever be able to live my life without constantly thinking about me and my mortality?

I am pulling out all the stops. I'm following everything my oncologist tells me to do. I also follow all the recommendations of my holistic practitioner. I work with the clinical licensed social worker every single week to address my feelings and vulnerability and sadness. I get up every morning and walk my dog 2 miles. I work with my trainer for strength training. I'm doing everything that I have read that has potential to lengthen my life. But I still feel so broken.
This week I meet with a another oncologist for a second opinion on the treatment and follow-up treatments. All I can do is keep searching for hope that I will not die from this particular disease. I know that I cannot see the future but I can't help searching for it. My mind just will not stop looking for ways to survive. One day I think I found the elixir of health and the next day my brain tells me Don't be foolish. You have no control over anything.

I guess I just put this out here hoping I will find somebody who has found the way forward and would share that with me.

I'm really afraid that I'm going to isolate my friends because I can't stop talking about myself. And it's so all over the board. One day I'm hopeful I've got this. Everything's going to be okay and the next day I damned myself.

I know I have the capacity to turn my thinking towards the positive. I just need a little bit of help getting there.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

@jeanknoll986

Hi Carol. Did you experience heart burn and burping after a cycle? Just wondering if there is anything I can take that doesn't interfere with chemo drugs and could help. I'm being careful with what I eat, but last night was horrible. My oncologist isn't available until Monday to call about.

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I was already on 20 mg omeprazole daily and that takes care of heartburn. I did have an issue with feeling like I had to burp or I'd eaten too much when I'd only had a little. I got some probiotics because the chemo kills the good gut bacteria too. It seemed to work great.

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@carol1024

I was already on 20 mg omeprazole daily and that takes care of heartburn. I did have an issue with feeling like I had to burp or I'd eaten too much when I'd only had a little. I got some probiotics because the chemo kills the good gut bacteria too. It seemed to work great.

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Thank you for responding so quickly!

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@jeanknoll986

Thank you for responding so quickly!

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You are welcome. It's in my email and it takes me straight here when I click on it. 😊

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@jeanknoll986

Hi Carol. Did you experience heart burn and burping after a cycle? Just wondering if there is anything I can take that doesn't interfere with chemo drugs and could help. I'm being careful with what I eat, but last night was horrible. My oncologist isn't available until Monday to call about.

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If you're prone to heartburn from eating certain things, I'd ask your primary care physician to prescribe the omeprazole. I'm on lowest dose of it. It's prilosec but prescription strength. I have none of the side effects listed. Googling it will take you to the mayo clinic site. I've had it for years and it's awful. I've been on omeprazole for about 3 years and it's a game changer. Good luck.

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@jeanknoll986

Hi Carol. Did you experience heart burn and burping after a cycle? Just wondering if there is anything I can take that doesn't interfere with chemo drugs and could help. I'm being careful with what I eat, but last night was horrible. My oncologist isn't available until Monday to call about.

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I hope you have solved your problem for this cycle. When I was on carbo/taxol, I took over-the-counter Pepcid for a couple days every cycle when I had reflux. That worked pretty well. Later I was on a clinical trial where Pepcid didn't work, but over-the-counter Prilosec did.

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@mablejoy

I too have a very similar story. My initial diagnosis was Figo Grade 1 Had a total hysterectomy with a pelvic wash and lymph node dissection The pathology report came back and I have cancer on my pelvic wall No lymph node involvement and other signs were good . I start chemotherapy in two or three weeks and have a total of 6 treatments initially every six weeks. I am concerned anxious scared but ready to start the journey Any advice encouragement I can get. Also any information questions etc would all be much appreciated

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I recently had a bilateral Salpingo oopherectomy to remove complex cysts. Grateful I did it but feel the ultrasound monitoring went on far too long. 69 years old. My gyne did a pelvic wash AFTER the procedure...I understood it should be done before? It was atypical. Tumours on both ovaries are borderline serous T13c....waiting for my oncology appt and treatment plan. Tubes were ok. What a roller coaster. Stage 1 and still 6 Rounds of chemo seems alot but the norm I read. Did they do that targeted kind that they inject into the peritoneal area? I suspect hysterectomy is next for me and more.😟 The wait is really hard. Been 2 wks since the referral, 3 since surgery. Feeling good from that. Glad to find this site. Good luck ladies on your journeys, I'll stay tuned in. Grateful to have a top notch new cancer center 10 minutes down the road and sites like this for support.

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I just wanted to say it does get better with time. I was dx with stage 1 endometriod endometrial and stage 1 ovarian cancer in 2009. I recurrent with endometrial in 2016 stage 4. But I had a wonderful surgeon whe removed all the tumors . I also had chemo before surgery. Will be on letrozole for 10 years. So far 8 years in remission. But the thinking of cancer every morning when I awake has improved. I may go days without it bothering. Hope same happens with you. Be Sure you keep up with all your checkups. I skipped about 3 years of checkups that is how it got so bad. I never miss a checkup now. Hope this helps

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@val64

I hope you have solved your problem for this cycle. When I was on carbo/taxol, I took over-the-counter Pepcid for a couple days every cycle when I had reflux. That worked pretty well. Later I was on a clinical trial where Pepcid didn't work, but over-the-counter Prilosec did.

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That's what omeprazole is, prilosec. The only difference is insurance pays for prescriptions but not OTC.

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@charlieboy

I just wanted to say it does get better with time. I was dx with stage 1 endometriod endometrial and stage 1 ovarian cancer in 2009. I recurrent with endometrial in 2016 stage 4. But I had a wonderful surgeon whe removed all the tumors . I also had chemo before surgery. Will be on letrozole for 10 years. So far 8 years in remission. But the thinking of cancer every morning when I awake has improved. I may go days without it bothering. Hope same happens with you. Be Sure you keep up with all your checkups. I skipped about 3 years of checkups that is how it got so bad. I never miss a checkup now. Hope this helps

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Yes it is very helpful.
Denise

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Sounds like you're doing all the right things, Denise. Stay strong. Your true friends will be there for you.

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