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Replies to "Wow thats crazy I was at 48 resting and 122 valsalva and was put on camzyos..."
Hypertrophic Cardiomyopathy (HCM) | Last Active: 6 days ago | Replies (29)
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Replies to "Wow thats crazy I was at 48 resting and 122 valsalva and was put on camzyos..."
My local cardio sent me to Dr Gill from the Cleveland Clinic where they first experimented with Camzyos. Dr Gill had me to a VO2 MAX treadmill test followed by an echo. Apparently I had no problem and he said it depended on quality of life. I was only ever taking 1/4 of the normal verapamil dose. My local cardio urged me to take it as prescribed. I did and I have been asymptomatic since. I am still going to Mayo to meet Dr. Dearani (they are friends) and see what he thinks. I think I would rather have the surgery than have to rely on ever changing prescriptions, dosages and side effects.